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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
05-26-2011, 09:28 PM
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Home!!
I just wanted to share that we made it home finally! We've been in the hospital since Bradley was born in February. We are very excited to have our family home and we are adapting quickly to home nursing and having our dining room turned into Bradley's 2nd bedroom
 I wanted to thank everyone for all the help and advice that I've gotten so far...it's really helped us along our journey!!
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Carrie-Mom to Bradley born 2/16/11 full term  , Pfeiffer Syndrome Type II, trach 3/21  , off of vent 3/26, cranio surgery 3/31/11, Fundoplication, Pyloroplasty & G-tube 4/25/11, MicKey Button 5/9/11, Home 5/24/11  Removal of lower occipital skull bone and temporary shunt 7/7/11, Forehead/Orbital Advancement 7/11/11, Permanent Adjustable Shunt 7/18/11. 
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#2
05-26-2011, 09:46 PM
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CONGRATULATIONS!! Enjoy!!
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Katie-mom to Mitchell, DOB 12/16/04 trisomy 13 mosaic, severe laryngotracheobronchomalacia trached 5/04, cleft lip and palate DECANNULATED 12/16/10 A GREAT BIRTHDAY GIFT! www.caringbridge.org/mn/mitchelljohncragg 
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#3
05-26-2011, 10:04 PM
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Yay! What a wonderful feeling! Since you had replied about Bradley being dry while sleeping, I wanted to let you know that warm air is much better. If you don't have an attachment for warm air, make sure to ask your Drs for one. Good Luck!
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 Alex, mom to Samantha born 38 weeks on March 7th, 2011 with Congenital Nasal Pyriform Aperture Stenosis, trached 3.30.11. Grade I Congenital SGS, diagnosed 11/30/11. Also mom to big brother Luke (3).
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#4
05-26-2011, 10:31 PM
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That's awesome! Congratulations!
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ROSA, mom to Kamilah; born on Dec 18 2008. Craniosynostosis Nissen & G-tube: Feb 13 2009 Trach: Apr 09 2009 Shunt: Jan 21 2010 Giant Cell Granuloma of the mandible: July 30 2010, (it grew back  )
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#5
05-26-2011, 11:13 PM
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Congrats!
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Mom to Amirah (born 1/13/10 @ 27 weeks)- trach, mic-key button, nissen - CLD, BPD, mild hypertension(resolved 10/3/10). Scheduled to decan on May 14, 2012  Amirah's Blog http://amirahnation.blogspot.com/
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#6
05-27-2011, 08:01 AM
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Congrats!!!!! My baby came home March 31st after 7 months in the NICU and even though it has been tough & exhausting at times HE IS HOME! That's all that matters! You guys will get into a good routine soon and life will become very "normal"
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Melissa - mom to triplets born 29w5d (8/1/2010) - Neva & Matthew are home and healthy! Jackson - g-tube/fundo (11/10), trach (1/11)
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#7
05-27-2011, 08:12 AM
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Congrats!!!!!!!!!!
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 Mommy to Ashton. Former 24 weeker, now 5 years old! Ashton has severe cerebral palsy, severe reflux, g tube fed, legally blind, cochlear implant for hearing, undiagnosed cyanotic episodes and tracheostomy which was done in Dec 2009. The love of my life! Also mommy to an angel, Hunter who came way too soon on March 28th 2009 at 18weeks and 4 days.
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#10
05-27-2011, 06:43 PM
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just remember traveling back and forth to the hospital when days get hard....what an awesome thing to have him home finally!!! congratulations
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 Mom to Caleb- born 9/7/2010 at 40 weeks, VACTERL association, thoracic insufficiency syndrome/restrictive lung disease related to scoliosis and missing/fused ribs, trach and G tube on 12/21/2010, home for the first time on 1/12/2011 , VEPTR implant 1/2012, working on being vent free
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