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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#11
04-25-2004, 02:10 PM
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He is a little miracle! I am so happy for you!
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#12
04-25-2004, 04:14 PM
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I hope that you can gain some insight from the DT and get on a course for no more infection
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Mom to Jack, born with a giant omphalocele on 6/30/02 at 32 weeks. Trached 12/23/02 due to secondary pulmonary hypertension. Decannulated 6/2/05! Strong, strong little man!!
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#13
04-26-2004, 11:19 AM
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WOW...what major accomplishments. Way to go Jakob!!
 karen
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Mom to Hannah, born 12/5/2000 with Congenital Central Hypoventilation Syndrome. Trached at 3 weeks, vented during asleep hours only (Since March 2004). Along with her brother, Justin, they are the joy of my life.
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#14
04-26-2004, 01:54 PM
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S & J,
Hey, I just realized you had posted again on the first page and that Jake is having breathing troubles, bad secretions, etc... didn't want to ignore that, I just didn't see it yesterday. I hope that this clears up and doesn't require anything else. I know it does seem like one thing after another - well - it probably IS one thing after another. I'm sorry guys. Christy
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Gaithy's Mom:28wk preemie born 8/2000 at 1 LB, IUGR, SGA, ROP, BPD, g-tube/nissen. Trached 4-2001 and LTV950 ventilator until 5-2003. Decannulated 8-3-04
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#15
04-26-2004, 06:24 PM
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No need to apologize, Christy...it's good to focus on the good stuff!!!...I just posted because we all know how it is...good things, bad things. So many little things are momentously appreciated good things for all of us trach parents. Who would have thought that I would post to "relative" strangers about the wonderful accomplishment of using a walker for example. Our world is just a bit different than most and that's why communicating on this board is such a good thing.
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Jakob, born Dec 02, Pfeiffer Syndrome, trached at 5 wks age due to mid-face hypoplasia, cranial vaultx2, monobloc, mid-face distraction, g-tube, pyloric stenosis, nissen, nasal stents, VP shunt, tonsils, adenoids, uvula all removed, tongue suspension, future pilot!!
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