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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#11
05-21-2011, 08:23 AM
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When Natalie was vented at that age her respirations were in the 60's to 70's while awake and active. They were much slower while sleeping. Natalie got upsized around a year to a 4.0 when she was getting ready to sprint.
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 [SIGPIC]Karen----Mom to Faith (6), and Natalie born 10/12/07 @ 25 weeks, 1lb 3oz. Came home 6/10/08 with a trach, vent, nissen with g-tube, and pda ligation. BPD, reflux, subglottic stenosis. Off the vent!!!! Double stage ltp 5/10. Decan 5/11/11!
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#12
05-24-2011, 10:39 AM
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ok...so what about air leaks and O2 sats...
His norm about a month ago while awake and playing was 97+ His norm while asleep was 96+ lately he has been more like 94-97 while awake and playing and 94-96 while sleeping sometimes dipping into the low 90s for a bit. i realize that we are blessed to have such good saturations so I'm not complaining. it's just different from his "norm". like I said he can vocalize very loudly and i can feel the air coming out of his nose while he sleeps. am I being paranoid or could this change in O2 sats be a problem?
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 Mom to Caleb- born 9/7/2010 at 40 weeks, VACTERL association, thoracic insufficiency syndrome/restrictive lung disease related to scoliosis and missing/fused ribs, trach and G tube on 12/21/2010, home for the first time on 1/12/2011 , VEPTR implant 1/2012, working on being vent free
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#13
05-24-2011, 12:56 PM
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Not sure if it could cause a problem, but we have some of the same issues with the vent. Harrison is constantly breathing through his nose and mouth...i can hear it and see it. It doesn't seem that there has been a huge change in his SAT's, but believe me, I am the Miss Paranoid, so I totally understand!!
What kind of pressure support is Caleb on? Have the settings been weaned at all lately??
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 SUSAN-mom to Harrison, born full-term(11/1/10) with an undiagnosed congenital diaphragmatic hernia (CDH), hypoplastic right lung (caused by hernia), trached at 4 months, g-tube and fundo at 6 weeks. Home in March 2011. Weaned completely off of the vent in July Wearing PMV 24/7, 02 at night, failed decannulation in October. Hoping for better results next time!www.caringbridge.org/visit/harrisonsnow
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#14
05-24-2011, 01:42 PM
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yea...it's like "am i being paranoid or is this my mommy gut talking"
he's on a PEEP of 6 (no pressure support) April he was taken off of a pressure support of 5 and his peep was left at 5 about 3 weeks ago they upped his PEEP to 6 (pressure support still at 0) because he was having lots of secretions and a chest xray showed atalectasis...they thought it might be a virus.... he seems to over that but they've left him at peep of 6...his sats returned to normal until this past week when they've been a little lower as described as above
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Mom to Caleb- born 9/7/2010 at 40 weeks, VACTERL association, thoracic insufficiency syndrome/restrictive lung disease related to scoliosis and missing/fused ribs, trach and G tube on 12/21/2010, home for the first time on 1/12/2011 , VEPTR implant 1/2012, working on being vent free
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#15
05-24-2011, 01:59 PM
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hmmm...i don't know. These kids certainly keep us on our toes!! Those are low settings for the vent. That is wonderful!!!
I would just keep an eye on the saturations (which obviously you are!). Harrison also had atalectasis 2 times in the past because he was not taking deep enough breaths (they suspected). This was before he was trached. Does Caleb seem to be taking big, deep breaths?? Atalectasis can definitely cause a drop in SAT's, but if he doesn't seem to have any additional symptoms, I wouldn't worry about it.
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SUSAN-mom to Harrison, born full-term(11/1/10) with an undiagnosed congenital diaphragmatic hernia (CDH), hypoplastic right lung (caused by hernia), trached at 4 months, g-tube and fundo at 6 weeks. Home in March 2011. Weaned completely off of the vent in July Wearing PMV 24/7, 02 at night, failed decannulation in October. Hoping for better results next time!www.caringbridge.org/visit/harrisonsnow
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