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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |

05-04-2011, 08:47 AM
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Join Date: Dec 2004
Location: England
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Stoma closure question
Am asking this question on behalf of someone else  Does anyone know of a graft being required in order to close a trach stoma, apparently this child's stoma is too large and will probably need a graft to close it. it's not something I've heard of - anyone else?? 
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Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14).
I am first and foremost a child
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05-04-2011, 09:00 AM
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I have heard of this--obviously not in our case--but when our doctors thought we would be a non-surgical decannulation, they told us that the stoma would need to be closed surgically. And they said that in some cases, along with "coring" the stoma, they might need to do a little skin stretching or skin graft to close it.
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Kristy
Nathan is 7! Trached at 2 hours old--laryngeal atresia. Double stage LTP 5/26/06, double stage LTP 1/23/09 and single stage LTP 4/21/09. Airway has restenosed, but we're still trach free 9/2012. Ding dong, the trach is gone!!
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05-04-2011, 01:05 PM
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Ayden didn't really have a graft, per se, but rather, the ENT took some muscle to cover over the stoma so that it "built it up" and wasn't sunken. When he did this, Ayden's stoma was probably around a 3.0 size or more. The skin covered over it and the scar is left to right, not up down. I don't know if this helps or not...
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Dawn

former 26 weeker -- 4/2006 -- trach, g-tube, nissen; came home 1/07 vented 24/7; Successfully decanned 8/8/2008 - 
Follow decan at: http://sleepy-dogs.blogspot.com/
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05-04-2011, 02:19 PM
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Join Date: Dec 2004
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Thanks for all the info, will pass it on! Knew I could rely on you guys 
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Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14).
I am first and foremost a child
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05-04-2011, 07:32 PM
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That's interesting, Dawn! Mackenzie's stoma is between a 3.5 and a 3.0... probably more like a 3.0. We just saw our ENT today, and he said he was willing to close the stoma sooner than the traditional 6 months. We're thinking of waiting 2 months and then getting it over with.
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05-05-2011, 02:59 AM
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Quote:
Originally Posted by Niff
That's interesting, Dawn! Mackenzie's stoma is between a 3.5 and a 3.0... probably more like a 3.0. We just saw our ENT today, and he said he was willing to close the stoma sooner than the traditional 6 months. We're thinking of waiting 2 months and then getting it over with.
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i want your ENT doc ! ours says six months then with the waiting list godness knows how long it will acctualy end up being!
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Life is not measured by the number of breaths we take, but by the moments that take our breath away.
Mum to an ex 24wk prem now 4 yrs old with Chronic lung disease, chryocid web, immobile vocal cords and vision impaired from ROP. Decanned 10th March 2011  , plan to repeat LTR due to body reabsorbing graph, date unknown
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05-05-2011, 05:28 AM
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Quote:
Originally Posted by glowingpurpleaura
i want your ENT doc ! ours says six months then with the waiting list godness knows how long it will acctualy end up being!
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We have been very fortunate. We have a terrific team. 
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