P has been a trach puller for about a year. No he's not still pulling it out on a regular basis. LOL
It started about the same time as with your daughter. We were really promoting wearing the valve. I think with the new vocalization and the new way of breathing it brought a big interest to the "trach area". Also if he was mad at me or trying to get my attention he'd pull it out too. I found that the way I reacted to him really influenced the amount of times he'd pull it. In the beginning all you want to do is freak and get it back in. After all the trach is suppose to be in the neck not out. LOL!!! As it happens more, and you get over the initial shock, you learn that it will be ok and you can get it back in. This is how we learned that Parker was doing better, (his cords and airway) because it would be out for a little longer then during a trach change. We saw a big difference at this point.
I wanted to add that we tried different ties, chains and tightening his ties to the point sometimes I felt his head would pop off. Ha, Ha. None of this worked for us. I saw the biggest results from my reaction to him doing it. Wait til she moves on to undoing the trach ties and the whole trach and ties are gone. That has been his newest thing.
I'm not meaning to make light of this or that it isn't a serious thing, only that the way we react to them can really make a difference. I have had to laugh a little with this or I believe I'd of had a heart attack. If I can help anymore let me know. Take Care.