I asked Dr. Willging about this crust business when we were up there for Lily's bronch last week. He didn't seem too worried. He said as long as she's not acting "sick" there's really no reason to do a culture. I was wondering about the serratia thing too, because I've noticed our tap water here leaves a pink film if it sits in the sink or toilet for any period of time. I wondered if maybe getting a little tap water in her trachea during baths/washing might have done it? Anyway, according to her bronch there is no airway inflammation or irritation, and Dr. Willging said he didn't notice a crust on the trach he took out. So I guess she's okay?
Thanks for all your ideas!
Erica (Lily's Mom)
Our fabulous Lily was born 5-26-01 with partial trisomy 7q, Pierre-Robin sequence, VSD, GER; had trach, GT, Nissen at 4 weeks, cleft palate repair at 6 months and 18 months. Decannulated 11-15-04. Proud big sister to Benjamin 10-10-03, baby Vivienne 3-5-07!