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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
02-08-2011, 09:04 AM
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Appointment w/ Cincy on Friday!
Hi Everyone!
I cannot believe that we are headed to Cincy in Friday for another ML&B. This is supposed to be a big appointment for us, as we should find out if HB is ready for the first of his double stage LTP. We're hoping that his size is o.k. (he's 20.5 lbs) but most importantly the edema and redness has subsided (we believe that this was caused from being sick two weeks prior to our last ML&B). Any words of advice or wisdom? If all looks well, how quickly will they be able to get us on the schedule? Much thanks!
__________________
 Brittany - Mommy of Hudson Bennett or otherwise known as "HB." 30 weeker with semi-diagnosed missing posterior cricoid section and/or acquired subglottic stenosis. Spent 9 weeks in the NICU before coming home on his due date. Trached 10/11/09, g-tube on 3/4/10, double stage LTP on 3/11/11. Awaing next steps!
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#2
02-09-2011, 08:54 AM
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Don't know how long it will take to schedule, just wanted to wish you all the best
__________________
  Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14). I am first and foremost a child
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