 |
 |
 |
|
|||||||
| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
 |
|
|
Thread Tools | Display Modes |
|
#1
01-21-2011, 01:35 AM
|
||||
|
||||
blowing bubbles
Hi i'm not sure if this belongs in OT but can you trached child blow bubbles? T only seems to be able to do it though a straw type contraption that you put your mouth on the end of the straw and blow (i'm guessing theres more of a seal that way) but a regular bubble wand appears impossible for him, however another trachie parent told me their child can blow bubbles.
Just wondering  Thanks
__________________
  Life is not measured by the number of breaths we take, but by the moments that take our breath away. Mum to an ex 24wk prem now 4 yrs old with Chronic lung disease, chryocid web, immobile vocal cords and vision impaired from ROP. Decanned 10th March 2011  , plan to repeat LTR due to body reabsorbing graph, date unknown 
|
|
#2
01-21-2011, 08:02 AM
|
||||
|
||||
|
Alexander can't yet, but it's something they're working on in speech therapy.
__________________
Janet, cruncy pagan automotive engineer mom to Alexander, born at 27 weeks, 1 lb 7 oz | vent/trach/gtube @ 5 months for BPD | g-tube free 7/11, trach free 8/11. Also mom to Bethany born @ 28 weeks, 2 lbs | gtube @ 5 months | trach/vent @ 6 months for BPD, bronchomalacia  
|
|
#3
01-21-2011, 08:03 AM
|
||||
|
||||
|
Sam never could, in fact he's just learning now and he's been decanned for 18 months, it probably depends on the child, and the condition of the airway - I am really hoping Sam can blow his birthday candles out this year.
__________________
  Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14). I am first and foremost a child
|
|
#4
01-21-2011, 11:16 AM
|
|||
|
|||
|
Mackenzie can't, but she desperately tries.
All the air ends up rushing out of her trach because she doesn't understand to part her lips a little.ETA: That's something you'd have a better chance at with a speaking valve of some sort.
|
|
#5
01-21-2011, 11:39 AM
|
|||
|
|||
|
My daughter can blow bubbles, and she is trached due to severe stenosis. It took her a while to learn. It has a lot to do with how she shapes the lips, and how close she is to the wand.
|
|
#6
01-21-2011, 03:33 PM
|
||||
|
||||
|
Quote:
thanks everyone for your replies glad to see we aren't the only ones as the other trach parent made me feel like he SHOULD be able to do it
__________________
Life is not measured by the number of breaths we take, but by the moments that take our breath away. Mum to an ex 24wk prem now 4 yrs old with Chronic lung disease, chryocid web, immobile vocal cords and vision impaired from ROP. Decanned 10th March 2011 , plan to repeat LTR due to body reabsorbing graph, date unknown
|
|
#7
01-21-2011, 03:37 PM
|
||||
|
||||
|
with his pmv, Joseph can blow out candles.. he is working on bubbles, but doesnt blow strong enough to make actual bubbles.. he blows the solution away from the wand some, but then it just sucks right back on.
__________________
 Lynn, mother of Brooke(19), Haely(17), Sydney(12)Dominic(1) and Joseph(DOB 11/03/06)DX:Jeune's Syndrome:trach 12/12/06:vent depend: Sprinting 12 Hrs a day!!!!EE:GERD:Hydronephrosis:Situs Inversus:Aortic Stenosis:Myocardial Hypertrophy:Kidney Transplant 08/18/10 http://www.caringbridge.org/visit/josephmollica
|
|
#8
01-21-2011, 08:05 PM
|
|||
|
|||
|
blowing bubbles
Tommy's true vocal cords are sealed shut 100%. So, he's 100% trache dependent. He learned how to rip off his artificial nose and blow bubbles from his stoma sight, but we work the wand so he doesn't end up inhaling bubble solution.
But when he had his airway reconstruction and had an opened airway for just a few short days, he quickly learned how to plug his trache with a finger &/or he'd do a chin tuck to block his trache to force air out his mouth so he wouldn't leak out his trache. And he does blow out his own birthday candles using his trache, but we give him his own cake with the candles on it Think it all depends on the child's airway and oral skills. Good luck and get the video camera ready for when it does happen! ~Maggie
__________________
Father (and mother) to Tommy, born via an emergency EXIT to Trache 8/1/06. Diagnosed with Congenital High Airway Obstruction Syndrome (CHAOS). VACTERRS Syndrome. Vocal cords completely fused until Double Staged LTP 03-03-08, refused shortly after stent was removed. Second Double Stage LTP 1-20-09. CarePage: BabyBoyce “With man this is impossible, but with God all things are possible.”
|
|
#9
01-21-2011, 10:19 PM
|
||||
|
||||
|
Quote:
precious
__________________
Life is not measured by the number of breaths we take, but by the moments that take our breath away. Mum to an ex 24wk prem now 4 yrs old with Chronic lung disease, chryocid web, immobile vocal cords and vision impaired from ROP. Decanned 10th March 2011 , plan to repeat LTR due to body reabsorbing graph, date unknown
|
|
#10
01-24-2011, 02:49 PM
|
||||
|
||||
|
Jaelyn can sometimes blow bubbles with her trach in place, although her attempts are inconsistent.
__________________
 Bridget, Proud Mother of Jaelyn (12/19/05); former 25 weeker, subglottic stenosis, BPD, PDA ligation, ROP, incontinentia pigmenti, single stage LTP 9/2007, double stage LTP 6/2010 and her sister Jordyn (8/16/07)  
|
|
«
Previous Thread
|
Next Thread
»
| Thread Tools | |
| Display Modes | |
Linear Mode
|
|
All times are GMT -5. The time now is 01:58 AM.