Anyone not had a bronch done

Rebecas_parents · #1 01-17-2011, 03:08 PM

Rebeca has never had a bronchoscopia done.

The doctors suggested it once, we agreed, and then they changed their minds saying that it was unneccessary, extremely uncomfortable and carried many risks in a child so small - she was trached at 7 months old weighing 4.5Kg.

We are now finding out that it is common to have a bronch done to check that the problems with breathing aren't caused by issues in the upper airway.

I am interested in knowing what other's experiences are.

lynn · #2 01-17-2011, 05:16 PM

Joseph had one pre and post trach, and continues to get them every six months for check of placement/size/length. He was trached at 1 month, not sure of the exact weight, but somewhere around 7lbs.

Ainsley's Mom · #3 01-17-2011, 06:35 PM

First bronch done at 3 days old if I recall. And we've had about 8 in all. And soft scopes done another 6-8 times. Although we don't know exactly the nature of Ainsley's airway issues it's not for lack of looking.

kadiera · #4 01-17-2011, 09:41 PM

It turns out that Alexander did not have one before/during his trach placement, which surprised the heck out of me. We generally have run about once every 6 months since leaving the NICU.

glowingpurpleaura · #5 01-18-2011, 03:30 AM

not entirely sure why your doctors are saying its uncomfortable for the child. My son gets put under a general anasetic for it and within an hour of waking from the anastetic you never would know he'd just had it done. Doesnt appear to cause any discomfort at all, he's 3.5yrs and had one done pretty much every six month to a year since he was six months old

bryantem · #6 01-18-2011, 09:23 AM

Addisyn had one pre trach to diagnose the tracheomalacia and then a follow up every 6 months while she was trached. She will be having one more when she goes in for her stoma surgery to evaluate her airway to make sure it can handle the surgery.

JessicaLalonde · #7 01-18-2011, 09:43 AM

We had 2 pre-trach.. One at 6 days old and the other at 29 days old. Only had one soft scope pre-trach at 26 days old..

We've had one bronch this summer (our first post trach) and possibly one this Spring if we fail our attempted decann

saywhatyouwill · #8 01-18-2011, 01:32 PM

emily got her trach at 5 months and she was about 7lbs.

it was during an MLB that they realised she needed the trach. the MLB was diagnostic to figure out what was wrong with her breathing.

Kate · #9 01-18-2011, 02:09 PM

We had 1 pre-trach I think. Then we went every year for one. However in the last year and a half we've had tons due to reconstruction and now we're having them every 3 weeks.

rosi's mom · #10 01-18-2011, 05:08 PM

Rosi had her first bronch at 2 months, probably about 3 lbs(?). Before they placed the trach they did another scope and the day they did the trach she was 2.1 kg. They wouldn't do a trach until she was 2 kg. Never seemed a big deal for her. Then she had one every 6 months about.