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Pediatric Tracheostomies For parents and caregivers of children with tracheostomies.  Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support.

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Old 05-31-2002, 06:09 AM
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cariaad cariaad is offline
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Location: Moore, OK
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I dont think that being delayed will effect him reaching his potential. Keep working with him, always. Alli is 21 months and isnt walking alone yet, newly decanulated but not forming words yet. But we have an OT who does speech therapy as well and she tells me that we just have to keep presenting opportunities for her. As long as he never suffered any brain damage I think that he is likely to catch up eventually. These kids are amazing, they succeed against all the odds! Sometimes it is slow going but I dont see why it cant happen! Try to remain positive. Maybe checking the Kids with Trach pages for updates on the older pages might give you some more encouragement? Deb
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24 weeker now almost 11 years old and in third grade!
trach-decanned for good in 2008, gtube, asthma, CP, MR, GERD, latex allergy, osteopenia, aplastic cerebellum, ADHD/OCD, 60 lbs of humor and fiest, 4'4" tall, patient at Shreveport Shriners Childrens Hospital,, and I may be leaving something out but she is happy and growing and the light of our lives! DECANNED 6-17-08
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Old 05-31-2002, 10:53 PM
Heather Trotter
 
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I don't know if I can really answer your question or not because I worry about the same thing with morgan but, My cousins son also had a trach when he was a baby. He also did not talk much and if I remember correctly he never wore a PMV. Brad had his trach for 8 yrs and in those 8 yrs he was very hard to understand. I think my cousin and his wife were the only ones who really could understand some of what he was saying. Anyway, Brad had his trach removed and I am happy to say that he had no problem at all talking. Some sounds were off but, all in all he talked very well. My cousin doesn't live around here but, from what I am told he (Brad is a regular chatter box) he loves to talk. He is 13 yrs old now and doing very well. Every child is different though and even though I seen it first hand with Brad I still worry also about my daughter. Don't ever think any question concerning your child is dumb. No question about the well being and the future of a child can be a dumb question. There are many of us with the same questions. I am actually really glad you asked it.

Mom to Morgan
19 months with Tracheamalacia,Laryngomalacia,Reflux Disease and TEF repair.
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