Pediatric Tracheostomy Home Care Guide at Amazon.com


Go Back   Aaron's Tracheostomy Message Board > Pediatric Tracheostomies
Reload this Page downsized!

Pediatric Tracheostomies For parents and caregivers of children with tracheostomies.  Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support.

Reply
Page 1 of 2 1 2 >
 
Thread Tools Display Modes
  #1  
Old 12-08-2010, 12:11 PM
kadiera's Avatar
kadiera kadiera is offline
Senior Member
  
Join Date: Jan 2009
Location: Troy, MI
Posts: 2,411
Default downsized!
Trach "clinic" this morning - ENT and then pulm.

ENT agreed to downsize....and gave us a cap, and a written copy of their decan procedure. Obviously, that's not any time this winter, but we're getting closer!
__________________
Janet, cruncy pagan automotive engineer mom to Alexander, born at 27 weeks, 1 lb 7 oz | vent/trach/gtube @ 5 months for BPD | g-tube free 7/11, trach free 8/11. Also mom to Bethany born @ 28 weeks, 2 lbs | gtube @ 5 months | trach/vent @ 6 months for BPD, bronchomalacia

Reply With Quote
  #2  
Old 12-08-2010, 12:28 PM
lynn's Avatar
lynn lynn is offline
Senior Member
  
Join Date: Feb 2009
Location: Carnegie, PA
Posts: 2,041
Default
YIPPPPPEEEEE!!!!! So great to have a plan!!! even if you have to wait a bit to put it into motion.
__________________
Lynn, mother of Brooke(19), Haely(17), Sydney(12)Dominic(1) and Joseph(DOB 11/03/06)DX:Jeune's Syndrome:trach 12/12/06:vent depend: Sprinting 12 Hrs a day!!!!EE:GERD:Hydronephrosis:Situs Inversus:Aortic Stenosis:Myocardial Hypertrophy:Kidney Transplant 08/18/10 http://www.caringbridge.org/visit/josephmollica
Reply With Quote
  #3  
Old 12-08-2010, 12:32 PM
Myself's Avatar
Myself Myself is offline
Member
  
Join Date: Aug 2007
Location: Alberta
Posts: 871
Default
WOOT!! WOOT!!
Exciting news for you all.
__________________

Lisa
Mom to Sloan, and fraternal twins Taiga and Gage.
http://myversionofmylife.blogspot.com
Reply With Quote
  #4  
Old 12-08-2010, 01:05 PM
suzanne2545's Avatar
suzanne2545 suzanne2545 is offline
Senior Member
  
Join Date: Dec 2006
Location: Whitby, Ontario
Posts: 4,063
Send a message via AIM to suzanne2545
Default
__________________
Suzanne
Mom to: Berkeley (June 2002),Griffin (July 2004), and Parker (November 2006) My family blog: http://www.mylifewithboys.typepad.com Parker's LTP Blog: www.parkersplace.wordpress.com
Reply With Quote
  #5  
Old 12-08-2010, 01:53 PM
bryantem bryantem is offline
Senior Member
  
Join Date: Dec 2008
Location: ARIZONA
Posts: 1,961
Default
Yayy!
__________________
Reply With Quote
  #6  
Old 12-08-2010, 02:06 PM
MomofTwoBoys MomofTwoBoys is offline
Member
  
Join Date: Sep 2009
Location: Ohio
Posts: 334
Default
Woo Hoo! Progress feels great I bet!!
__________________
Melissa, mom of two great boys... Christian 8 yrs old and Hunter 2 yrs old... former 24 weeker(born at 15.3 oz, 11 inches); bpd, pulmonary hypertension(resolved), nissen/g-tube, off of o2 12/17/10, off the vent 6/30/10... DECANNULATED 12/17/10!!!
Reply With Quote
  #7  
Old 12-08-2010, 02:29 PM
Ainsley's Mom's Avatar
Ainsley's Mom Ainsley's Mom is offline
Senior Member
  
Join Date: Feb 2007
Location: Seattle WA
Posts: 6,490
Default
That's fantastic! Good luck capping!
__________________
SUSAN - Mom to Ainsley (age 6 - DOB 10/18/06) + Evie (age 12) and Adrian (age 9). Adorable and Trached since 11/06 (scarred vocal cords & OSA) but capping with mixed success since 1/09, sagittal craniosynostosis (cranial reconstructions 1/07 & 7/07), MicKey G-tube 06/07, Nissen 10/08, unusual form of cerebellar hypoplasia, hip dysplasia (Surgery 11/07 & 4/10), ptosis(post-surgery).

Blog Link: http://ainsleyrae.blogspot.com/
Reply With Quote
  #8  
Old 12-08-2010, 02:42 PM
Kate's Avatar
Kate Kate is offline
Senior Member
  
Join Date: Jun 2005
Location: Minnesota
Posts: 4,727
Default
That's exciting!!! It is nice to have a plan!
__________________
Katie-mom to Mitchell, DOB 12/16/04 trisomy 13 mosaic, severe laryngotracheobronchomalacia trached 5/04, cleft lip and palate DECANNULATED 12/16/10 A GREAT BIRTHDAY GIFT!
www.caringbridge.org/mn/mitchelljohncragg

Reply With Quote
  #9  
Old 12-08-2010, 07:37 PM
landzsmum landzsmum is offline
Junior Member
  
Join Date: Aug 2009
Location: nyc
Posts: 83
Default
__________________
Mum to Zoe and Lily, 23-weekers born 03/27/09, 1lb 3oz. Lily trached 07/15/09; acquired supra-glottal stenosis due to intubation and multiple failed extubations. Lily came home to join Zoe on 09/16/09! Double stage LTP 07/22/10 followed by four balloon dilations. Decannulated 12/02/10!

Reply With Quote
  #10  
Old 12-08-2010, 08:37 PM
jamie's Avatar
jamie jamie is offline
Senior Member
  
Join Date: Dec 2009
Location: galt california
Posts: 1,260
Default
Reply With Quote
Reply
Page 1 of 2 1 2 >

« Previous Thread | Next Thread »

Thread Tools
Display Modes
Linear Mode Linear Mode

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
vB code is On
Smilies are On
[IMG] code is On
HTML code is Off


All times are GMT -5. The time now is 04:22 AM.

Contact Us - Aaron's Tracheostomy Page - Archive - Top

Disclaimer: The information and resources on Aaron's Tracheostomy Page, Aaron's Tracheostomy Message Boards and the Trachties Listserv are for educational purposes only. This web site and its resources are not engaged in rendering medical, pharmaceutical nor therapeutic advice or professional services. The information provided through these pages, message boards and listserv or any links from this web site should not be used as a substitute for professional advice by qualified doctors and/or therapists.

Powered by vBulletin® Version 3.6.5
Copyright ©2000 - 2013, Jelsoft Enterprises Ltd.