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  #1  
Old 08-31-2010, 03:05 PM
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Thumbs up Madeline's Decannulation!
YouTube Video
ERROR: If you can see this, then YouTube is down or you don't have Flash installed.
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Naturally conceived id twins born @ 25 2/7 wks on 1/6/09

Madeline 1lb13oz@birth- Mild ROP (gone!), severe CLD, BPD, ASD, pulm hyp, trach & g-tube 7/10/09 - At South Shore Hosp 1/6-5/22/09, Childrens Hospital Boston 5/22-9/8/09, Franciscans 9/8/09-6/14/10 --> Successfully decanned 8/31/10

Molly 1lb12oz@birth- PDA, mod ASD (2 holes), Stage 3 ROP (success laser surgery), CLD, pulm hyp, on O2 low flow cannula at 750 mL - At SSH 1/6-5/15/09 - HOME!

MICROPREEMIE MOMMY BLOG

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Old 08-31-2010, 06:48 PM
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Awww what a doll.....the end had me in tears with her little pouty face and then cry!!!!!!!!!!!!!! Congrats!!!
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Mommy to Ashton. Former 24 weeker, now 5 years old! Ashton has severe cerebral palsy, severe reflux, g tube fed, legally blind, cochlear implant for hearing, undiagnosed cyanotic episodes and tracheostomy which was done in Dec 2009. The love of my life! Also mommy to an angel, Hunter who came way too soon on March 28th 2009 at 18weeks and 4 days.
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Old 09-01-2010, 05:10 AM
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Congratulations, and I have to say she is super cute!
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Mom to Emilia born July 5, 2008 Trached and vented at 7 weeks. Finally diagnosed with Centronuclear Myopathy in February.
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Old 09-01-2010, 07:54 AM
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That's so great!!! She was certainly not up for the adoring crowd. But at least she has the video to see one day when this is all forgotten. Just wonderful!
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Kerry, mom to identical twins, Elijah & Milo, both trach dudes, 26-weekers as a result of Twin To Twin Transfusion Syndrome (2002).
Daughter, Maisie ('05) & Henry ('08). *BOTH decanned after LTP w/rib graft 4/10 & 7/10!* wooo hooooo!

The Birthday Boys by TwinTransfusion, on Flickr
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Old 09-01-2010, 04:20 PM
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Ahh, she's looks like she doesn't know what to think. I hope she gets used to the idea real quick. Thanks for posting this! It's great to have videos for reference. I find it very helpful!
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SUSAN - Mom to Ainsley (age 6 - DOB 10/18/06) + Evie (age 12) and Adrian (age 9). Adorable and Trached since 11/06 (scarred vocal cords & OSA) but capping with mixed success since 1/09, sagittal craniosynostosis (cranial reconstructions 1/07 & 7/07), MicKey G-tube 06/07, Nissen 10/08, unusual form of cerebellar hypoplasia, hip dysplasia (Surgery 11/07 & 4/10), ptosis(post-surgery).

Blog Link: http://ainsleyrae.blogspot.com/
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Old 09-02-2010, 09:02 AM
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Quote:
Originally Posted by Ainsley's Mom View Post
Ahh, she's looks like she doesn't know what to think. I hope she gets used to the idea real quick. Thanks for posting this! It's great to have videos for reference. I find it very helpful!
I thought it would be good to post. Here I was thinking she wouldn't have a problem with it and she seemed generally nervous and/or missing the trach! I'm not too sure how to make it less scary considering there were so many strangers in the room...
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Naturally conceived id twins born @ 25 2/7 wks on 1/6/09

Madeline 1lb13oz@birth- Mild ROP (gone!), severe CLD, BPD, ASD, pulm hyp, trach & g-tube 7/10/09 - At South Shore Hosp 1/6-5/22/09, Childrens Hospital Boston 5/22-9/8/09, Franciscans 9/8/09-6/14/10 --> Successfully decanned 8/31/10

Molly 1lb12oz@birth- PDA, mod ASD (2 holes), Stage 3 ROP (success laser surgery), CLD, pulm hyp, on O2 low flow cannula at 750 mL - At SSH 1/6-5/15/09 - HOME!

MICROPREEMIE MOMMY BLOG

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Old 09-02-2010, 08:32 PM
RylanDakota RylanDakota is offline
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That's so exciting!!
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[center]Stephanie, momma to Rylan & Dakota 31-wk twin girls (11.14.09), Rylan - colostomy (11.18.09), trach for SGS Grade III, tracheomalacia (1.08.10), had 2 masses removed from her airway (9/1/11 & 10/14/11), g-tube fed , VACTERL syndrome. Dakota - no strings or tubes!
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Old 09-19-2010, 01:52 AM
libby1205 libby1205 is offline
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She is super cute and I cried watching it too. So exciting
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Mommy to Isabella and Brooke ( 7/18/08) ex 25 weekers-Brookie passed away 8/31 post PDA ligation due to severely premature lungs Isabella- trach 12/12 for subglottic stenosis-VENT FREE 3/12/10!!
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Old 09-19-2010, 06:22 PM
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She is such a cutie, she seems much less aware that the trach is gone, than she is about the roomful of strangers staring at her!!
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Lynn, mother of Brooke(19), Haely(17), Sydney(12)Dominic(1) and Joseph(DOB 11/03/06)DX:Jeune's Syndrome:trach 12/12/06:vent depend: Sprinting 12 Hrs a day!!!!EE:GERD:Hydronephrosis:Situs Inversus:Aortic Stenosis:Myocardial Hypertrophy:Kidney Transplant 08/18/10 http://www.caringbridge.org/visit/josephmollica
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