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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
06-23-2010, 12:07 PM
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So mad I could spit!
Yesterday I get a call from Addy's feeding therapist that DDD canceled her feeding Auth. I sent DDD an email last week asking them to auth Speech because I found a new therapist. She changed her feeding auth so that Addy has feeding and speech with the same therapist without asking me or contacting me. I neglected to put SPEECH in the email, however per our verbal conversation, we were working on getting her a speech, not feeding therapist. Addy has a history of aspirating. Her therapist has been with her since day one, and has been a good fit for her. All of you know how hard that is to find and if you get someone that works so well with your child to keep it when you get it.
Ugh. If you don't know or understand something, then ask. Don't decide who and where my child gets her therapies from. That is my job, especially since you were unwilling to do your job and help me find these therapies. This woman has been downright useless when it comes to getting anyting from her. I can't even get an IFSP from her.
__________________
Last edited by bryantem : 06-23-2010 at 05:07 PM. 
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#2
06-23-2010, 03:37 PM
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Grrr, Beth, I'm not surprised you are mad, that just sucks
__________________
  Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14). I am first and foremost a child
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#3
06-23-2010, 04:56 PM
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oh my I'd be seeing red too!!!! hope you can get it all sorted out (even though it is something you should NOT have to be bothered with)
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 Lynn, mother of Brooke(19), Haely(17), Sydney(12)Dominic(1) and Joseph(DOB 11/03/06)DX:Jeune's Syndrome:trach 12/12/06:vent depend: Sprinting 12 Hrs a day!!!!EE:GERD:Hydronephrosis:Situs Inversus:Aortic Stenosis:Myocardial Hypertrophy:Kidney Transplant 08/18/10 http://www.caringbridge.org/visit/josephmollica
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#5
06-23-2010, 08:19 PM
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 I hope you can get the mess sorted out.
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SUSAN - Mom to Ainsley (age 6 - DOB 10/18/06) + Evie (age 12) and Adrian (age 9). Adorable and Trached since 11/06 (scarred vocal cords & OSA) but capping with mixed success since 1/09, sagittal craniosynostosis (cranial reconstructions 1/07 & 7/07), MicKey G-tube 06/07, Nissen 10/08, unusual form of cerebellar hypoplasia, hip dysplasia (Surgery 11/07 & 4/10), ptosis(post-surgery). Blog Link: http://ainsleyrae.blogspot.com/ 
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#6
06-23-2010, 09:31 PM
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Very frustrating...hope you can get things sorted out soon.
__________________
 JENNIFER-mom to Linton (11), Gideon (7), and Linnae (3-born 5 wks early on 3-22-08), PRS, Trach April 08, VSD-repaired Sept. 08, Ear Tubes-Jan 09, Cleft Palate-repaired May 09 (severe complications with tongue swelling-still ongoing issue), Jaw Distraction-June 09, Jaw Distractor Removal-Nov 09, Adenoidectomy-Feb 10, Reflux-resolved, Discharged from P.T. and O.T...hoping for decan sometime soon! http://www.caringbridge.org/visit/linnaeellis1
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