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Old 06-17-2010, 08:06 PM
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JKagemann JKagemann is offline
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Default How do I close the stoma after decannulation?

Hello!

Livonia is almost 18-months-old and she just came home from her two-day sleep study. The nurse practitioner with ENT did not bandage the stoma site or give us any advice, other than to "put a cute little Band-aid on it".

We've tried just about everything to cover the stoma, but the bandages start by bullfrogging, eventually develop an air leak, then start peeling off. I have tried Tegaderm, Band-Aid, Nexcare Absolute Waterproof tape, and Band-Aid Tough-Strips (fiber reinforced like duct tape). At the moment, she is wearing Steri-Strips, covered in silk tape, covered in Tegaderm. The whole bandage is bullfrogging.

Since her doctors apparently have no particular system in place for post-decannulation stoma care, I was hoping for advice as to what I am supposed to do. Has anyone received useful advice from their doctors, or found something that works?

Thanks so much!
Jennifer
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Livonia's primary symptom is hypotonia, causing laryngomalacia, tracheomalacia, bronchiomalacia, aspiration of thin fluids, etc. She is thriving now after a very difficult first year.
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Old 06-17-2010, 09:55 PM
ericnrosesmom ericnrosesmom is offline
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We've had the same problem since my son was decanned in April. Everyone said his stoma would close on its own but it never has. It's shrunk some bur still very open. He's having it surgically closed by ENT next week. Just out of curiosity, where in Indiana are you? We're in La Porte, between Michigan City and South Bend.
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Jen, proud mommy of Eric. ASD, VSD'S, coarc (all repaired) g-tube removed 2/10, DECANNED 4/7/10!!!!!!!!!!!!!! and baby sister Rose (mild asd but otherwise healthy thank God!!!!!!!

Nothing and no one can beat you unless you let them, and then you will deserve it.
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Old 06-17-2010, 10:16 PM
bryantem bryantem is offline
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We were told to just keep it covered for a few days. The hospital used a piece of gauze and tape, and when at home I used a bandaid. We were told to keep it dry until her next appointment with the ENT and now she can get it wet. Addy's stoma is closed, except for a little pin hole, but nothing is going in or out of that hole.
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Old 06-18-2010, 01:01 AM
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G was decaned on April 29th. His stoma is still open and leaks air and secrtions all the time. We just leave it open and keep it dry. They are planing to do a surgical closer some time in the near future.
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Dawn
Mom to Geoffrey born November 13, 2007 at 23 weeks,217 days in NICU, PDA, severe BPD & CLD, Pulmonary hypertension, Left Vocal Cord Paralyzed, Pectus Carinatum, Esophageal Achalasia, Plus more minor DX's.Vent Free after 19mths,Trached and Mic-key button on 3/21/08,Decanulated 4/29/2010, Krista 21, Zoee 9,MIL to Antonio 27,Grandma to Mia 3
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Old 06-18-2010, 08:25 AM
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saywhatyouwill saywhatyouwill is offline
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we used an iv3000 cannula dressing. she wasn't allergic to it, they're big so good coverage, and they keep out all bugs.
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*clare.
mum to emily
12/02/07 (placental abruption)
APGARS 0+1 (HIE gr.2/seizures) but she MADE IT! with the determination that we still see in her every day.
Grade III SGS - emergency tracheotomy July 2007.
2 stage LTR July 09 - DECANNED 27.9.09

tracheomalacia (GONE!! Sept08)
partial agenesis of the corpus callosum
residual VSDs post-surgery but lung pressures normal (Nov08),

?septo-optic dysplasia.


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Old 06-18-2010, 09:03 AM
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haltec haltec is offline
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We were told to cover with a band aid for a couple day and then just keep it clean. Sienna's stoma did not close on its own. We had it surgically closed 4 months after decannulation.
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Claudia - Mom to Sienna (4-22-07) and Sammy (12-14-2008).
Sienna was trached 9-27-07 for vocal cord paralysis. Right cord now moving.
Decannulated on 7-16-2008!
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  #7  
Old 06-19-2010, 10:46 PM
Jennifer
 
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Default stoma

My son was decanned this month. We use two 2x2s folded & tape placed over it extending over the edges. The tape is really secure. The nurse in the PICU gave us two rolls as well as two other different rolls of tape. It really works. If the stoma doesn't close completely toward end of July, it will be surgically closed.
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