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#1
06-06-2010, 09:31 AM
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Hi from the UK.
Hi my name Greg and my Girlfriends name is Parris. We together have our beautiful baby boy Luca. Luca was born prem at 25weeks+ 4days on the 14 of January 2009 weighing in at 2lb3oz which was quite a size for how early he was. He was ventilator dependant from birth. The first three months of being in NNU (NICU) was just a roller coaster, infection after infection. He was tryed on CPAP via Nasal mask numerous times becoming shorter periods each time meaning he had to be re intubated. This caused him to develop alot of scar tissue almost completely blocking the air way. He had his tracheostomy inserted at the end of april and it was the best decision we had ever made!
There is lots more to tell but I need alot more time and alot more space  Now Luca is 17 months old and is really starting to explore the world becoming more active and stronger by the day (although he is currently unwell).
__________________
Luca Collett 17months old. 
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#2
06-06-2010, 10:46 AM
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Hello Greg, glad you found the site, looking forward to getting to know you, Parris, and Luca.
Hope he is feeling better soon.
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 Lynn, mother of Brooke(19), Haely(17), Sydney(12)Dominic(1) and Joseph(DOB 11/03/06)DX:Jeune's Syndrome:trach 12/12/06:vent depend: Sprinting 12 Hrs a day!!!!EE:GERD:Hydronephrosis:Situs Inversus:Aortic Stenosis:Myocardial Hypertrophy:Kidney Transplant 08/18/10 http://www.caringbridge.org/visit/josephmollica
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#3
06-06-2010, 03:24 PM
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Hi Greg, it's good to welcome you and your family. This is a great place for support and advice, glad you found us
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  Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14). I am first and foremost a child
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#4
06-06-2010, 09:01 PM
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Welcome Greg!!! My son was also a preemie (24 weeker) and will be 5 years old on Thursday!
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 Mommy to Ashton. Former 24 weeker, now 5 years old! Ashton has severe cerebral palsy, severe reflux, g tube fed, legally blind, cochlear implant for hearing, undiagnosed cyanotic episodes and tracheostomy which was done in Dec 2009. The love of my life! Also mommy to an angel, Hunter who came way too soon on March 28th 2009 at 18weeks and 4 days.
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#5
06-07-2010, 10:22 AM
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Welcome to you and your family... This is a wonderful place for support and answers...
__________________
Dawn Mom to Geoffrey born November 13, 2007 at 23 weeks,217 days in NICU, PDA, severe BPD & CLD, Pulmonary hypertension, Left Vocal Cord Paralyzed, Pectus Carinatum, Esophageal Achalasia, Plus more minor DX's.Vent Free after 19mths,Trached and Mic-key button on 3/21/08,Decanulated 4/29/2010, Krista 21, Zoee 9,MIL to Antonio 27,Grandma to Mia 3  
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#6
06-09-2010, 06:44 PM
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Welcome and glad you found us! Karen
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Karen, married to Charlie. Mom to Gilbete', Jeanette , Andrea, Ben, Ciara, Brian and Brady. Also mom to Alize who is with God. Grandmother to Marek, Paige, Vincent, Leilani and Cayden, Emma and Samuel. 
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#7
06-10-2010, 09:29 AM
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Hello Greg ... Welcome. This is an amazing resource. Our daughter Sahana is a little over 2 yrs old now and was born at 24 weeks.
Ask away and share away. Harish
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Dad of Sahana; 24-weeker born 12/2007; Acquired sub-glottic stenosis due to intubation and multiple extubations; Decanned as scheduled on April 12, 2010
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#8
06-10-2010, 10:05 AM
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welcome!!! This is a great place for questions and support!!!
__________________
Katie-mom to Mitchell, DOB 12/16/04 trisomy 13 mosaic, severe laryngotracheobronchomalacia trached 5/04, cleft lip and palate DECANNULATED 12/16/10 A GREAT BIRTHDAY GIFT! www.caringbridge.org/mn/mitchelljohncragg 
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#9
06-11-2010, 01:14 PM
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Hi welcome to the boards. This place has loads of great advice. Hope Luca is feeling better soon.
We're in the UK too.
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Laura, Mum to Dominic, born full term in September 2005. Trach at six weeks due to a subglottic haemangioma and acquired subglottic stenosis. LTR in August 2009 and decannulated February 2010. A few other issues, that seem to be slowly resolving.
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#10
06-16-2010, 03:35 PM
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Hi Greg,
My daughter Nadia was also born at 25 + 4 weeks and turned 2 a week ago (very old picture below!). We live in London and she is under the care of GOSH, though her trachy was first put in at St Mary's Paddington when she was 4 months old. Apart from her trachy Nadia has done amazingly well and we are just waiting to hear when we can start to think about corrective surgery. Where abouts in London do you live? Sarah x
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Mum to Nadia (ex 25 weeker) diagnosed with paradoxical bilateral vocal cord palsy at 4 months. Failed decannulation in August '09 and reintubated at GOSH October '09. Single Stage LTR March '11 www.nadiaconnelly.blogspot.com 
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