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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
05-27-2010, 09:55 AM
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Reconstruction today
Natalie is having her reconstruction today at CHOP. She started about 9:30. Will know if its a single or double stage in a bit. They were not going to be sure until they were in there. Will update more when we know.
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 [SIGPIC]Karen----Mom to Faith (6), and Natalie born 10/12/07 @ 25 weeks, 1lb 3oz. Came home 6/10/08 with a trach, vent, nissen with g-tube, and pda ligation. BPD, reflux, subglottic stenosis. Off the vent!!!! Double stage ltp 5/10. Decan 5/11/11!
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#2
05-27-2010, 10:22 AM
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Oh Karen, I didn't know she was up for an LTP now. Good luck, keep us posted!
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Kerry, mom to identical twins, Elijah & Milo, both trach dudes, 26-weekers as a result of Twin To Twin Transfusion Syndrome (2002). Daughter, Maisie ('05) & Henry ('08). *BOTH decanned after LTP w/rib graft 4/10 & 7/10!* wooo hooooo!  The Birthday Boys by TwinTransfusion, on Flickr
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#3
05-27-2010, 10:32 AM
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You are in my prayers today. I hope the surgery is quick and uncomplicated!
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Kristy Nathan is 7! Trached at 2 hours old--laryngeal atresia. Double stage LTP 5/26/06, double stage LTP 1/23/09 and single stage LTP 4/21/09. Airway has restenosed, but we're still trach free 9/2012. Ding dong, the trach is gone!!
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#5
05-27-2010, 11:46 AM
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Best wishes and lots of hugs.....
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Dawn Mom to Geoffrey born November 13, 2007 at 23 weeks,217 days in NICU, PDA, severe BPD & CLD, Pulmonary hypertension, Left Vocal Cord Paralyzed, Pectus Carinatum, Esophageal Achalasia, Plus more minor DX's.Vent Free after 19mths,Trached and Mic-key button on 3/21/08,Decanulated 4/29/2010, Krista 21, Zoee 9,MIL to Antonio 27,Grandma to Mia 3  
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#6
05-27-2010, 11:49 AM
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Wishing you good luck and a speedy recovery!
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  Bridget, Proud Mother of Jaelyn (12/19/05); former 25 weeker, subglottic stenosis, BPD, PDA ligation, ROP, incontinentia pigmenti, single stage LTP 9/2007, double stage LTP 6/2010 and her sister Jordyn (8/16/07)  
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#7
05-27-2010, 01:03 PM
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Best of luck!!
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  Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14). I am first and foremost a child
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#8
05-27-2010, 01:38 PM
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Karen, hope it's going well and they are finishing up. Is Dr. Jacobs doing it?
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Angela - mom to Zach 14, Jake 12, Nick 9, & Kate 9/28/06 Pierre Robin Sequence, Stickler Syndrome, decannulated July 4, 2008 -- Kate's blog http://pieceofkateb.blogspot.com/ 
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#9
05-27-2010, 04:09 PM
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Good luck, hope all goes well!
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Mom to Jacob, 26 Weeker - Our miracle boy, hero  and the light of our lives Born 06/25/06; trached 10/17/06 for bilateral vocal cord paralysis, laryngomalasia, tracheamalasia, acquired subglottic stenosis, Failed Double Stage LTP 2009, Failed Single Stage LTP 09/16/10, Retrached 10/03/10;CP.
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#10
05-27-2010, 04:18 PM
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Thinking of you! I hope all went well!
Kris
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Kris 3/24-26wk twin girls born 7/01 at 1lb15 & 1lb13. Rynn-trach. malacia, Grade 1 SGS, reflux, asthma, autism(high funct. Asperger's) & epilepsy. Madelyn-severe trach. malacia, Grade 3 SGS(Trached 10/21/01 to 11/20/11 DECANNED) ,PVL,BPD,CP,submucousal cleft,reflux, G-button(12/01), nissen X2, off vent '03.Two of the most Perfect Princesses!  !!
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