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Old 04-29-2010, 02:32 PM
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Ainsley's Mom Ainsley's Mom is offline
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Question At What Age Can A Child Suction Him/Herself?

My nurse asked me this question and I'm curious to know (even though for Ainsley I'm sure it won't be any time soon). Obviously children with motor skill difficulties would have a much harder time. I'm curious if any of our kids have been able to do it themselves and at what age. TIA!
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SUSAN - Mom to Ainsley (age 6 - DOB 10/18/06) + Evie (age 12) and Adrian (age 9). Adorable and Trached since 11/06 (scarred vocal cords & OSA) but capping with mixed success since 1/09, sagittal craniosynostosis (cranial reconstructions 1/07 & 7/07), MicKey G-tube 06/07, Nissen 10/08, unusual form of cerebellar hypoplasia, hip dysplasia (Surgery 11/07 & 4/10), ptosis(post-surgery).

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Old 04-29-2010, 03:54 PM
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I think it really depends on the child, Sam was never able to suction himself and he was 6 when he was decanned, though I seem to recall Angus having a go when he was about 3. I think if the child has no issues other than the airway then they can probably be taught. And like all developmental skills, I suspect girls may be ready to learn earlier than boys
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Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14).
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Old 04-29-2010, 06:05 PM
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Angelo was 6 when he started to suction all by himself, but with me there just in case. It makes it so nice in the car when he could do it himself. He would "HELP" before that by me inserting the cath and him covering to make the suction.
Angelo has no cognitive delays and knows when he needs to be suctioned.

Louise D
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Mom to Aubrey 25, Alfonso 30 (Aubreys new husband), Andrew 22, Angelo 9: Trached at 8mo due to car accident. Subglottic stenosis, Paraplegic, g-tube (closed) neurogenic bladder and bowel. Decanulated 07/25/07. Re-Trached 9/26/07
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Old 04-29-2010, 07:44 PM
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Nathan was actively "helping" at 3, but he was not comfortable doing it completely by himself. He would hold our hands and lead them right up to the trach and try to get the catheter in the cannula. He could walk over to the suction machine and get out the catheter, attach it to the tube and turn on the machine.
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Nathan is 7! Trached at 2 hours old--laryngeal atresia. Double stage LTP 5/26/06, double stage LTP 1/23/09 and single stage LTP 4/21/09. Airway has restenosed, but we're still trach free 9/2012. Ding dong, the trach is gone!!
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Old 04-29-2010, 09:37 PM
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Celia started "helping" when she was about 4-5,,significant delays but sure knew what the suction machine was all about. She decides when she wants suctioned,,gets the suction machine,,turns it on,,sometimes puts the catheter in herself(after a few tries to hit the hole lol and barely getting in the part that sticks out) while I have my thumb over the hole on the cath,,most of the time I am the one that has control of the cath though.
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Gretch mom to, Heather(22), Aimee(19), and Celia(14) Dandy-Walker syndrome,cleft palate(repaired at 9 yo!),t-tubes,asd, left pulminary arterial stenosis,trach,aspiration,reflux,fundo,g-tube,npo,dysphagia,kidney defect,neurogenic bladder & bowel,spina bifida,scoliosis,seizures,hip dysplasia, sensory issues, ADHD,vasomotor rhinitis,autistic like behaviors, hearing aides.
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Old 04-30-2010, 01:01 AM
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i can suction myself only with miror
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Old 04-30-2010, 09:18 AM
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My daughter just turned two and she is really trying to suction herself. She thinks it's a fun game. First she tries to create secretions by coughing, then runs over to the suction machine, grabs the catheter, attaches it to the tubing on the machine, pretends to turn on the suction machine, and then starts putting the catheter very close to the trach. It's very funny and cute, however, she doesn't have any sense of germs and sanitizing, so it makes me nervous that she'll touch the catheter to other stuff and then get it in her trach. We are trying to set boundaries but she's a fiesty two year old and doesn't like to be told "no". I'm also glad she's not strong enough to turn on the suction machine yet--otherwise we would hear that thing go off constantly.
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JENNIFER-mom to Linton (11), Gideon (7), and Linnae (3-born 5 wks early on 3-22-08), PRS, Trach April 08, VSD-repaired Sept. 08, Ear Tubes-Jan 09, Cleft Palate-repaired May 09 (severe complications with tongue swelling-still ongoing issue), Jaw Distraction-June 09, Jaw Distractor Removal-Nov 09, Adenoidectomy-Feb 10, Reflux-resolved, Discharged from P.T. and O.T...hoping for decan sometime soon! http://www.caringbridge.org/visit/linnaeellis1
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Old 04-30-2010, 06:38 PM
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I taught Angus at 3, and he could do it fine, but he was a bit slow and after the novelty wore off, he lost interest. I've been encouraging him to do more himself again because he is nearly 6 and he really needs to get more independent.
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Old 05-01-2010, 08:37 AM
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Robin is 12 and doesn't suction himself yet. He takes responsibility for coughing up his secretions into a tissue or paper towel whenever possible (through his trach though, mostly the don't come through his mouth and when they do, he finds it gross), but when he needs a suction, he is usually coughing so hard that it's better to have someone doing it for him. He does his own inhaler, knows how to change the regulator on the O2 tanks, can identify if there is a hole in the tubing, trouble shoot lots of vent problems etc. so I'm pretty happy with his level of independence that way. We do have one nurse that pretty much wants him to do all of his own care, but with her, it's more that she wants to sit and read a book at school all day, rather than about him!
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Monica - mom of Vincent, Jeremy, Joey, Logan (15) and Robin (15) - trached since 11 months, vent (at night only since April '08), Bard button, O2 24/7, primary dx adenovirus causing scarring of lungs - hence, bronchiolitis obliterans.
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Old 05-01-2010, 07:56 PM
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Mackenzie's 19mo and has pieced together that the suction cath goes in her trach. A few days ago she took off her HME and was pointing the tip of the cath at the opening of the trach. We ask her to help us do things, like put her HME on, take it off, etc so I think suctioning herself is the next step... although we won't try that for a while yet.
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