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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
05-21-2002, 08:15 PM
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HI I just wanted to take a minute to tell everyone that Alli is doing good so far without her trach! Yesterday was one week! We saw the ORL for a follow-up this afternoon and he was very pleased. He says the wheezing we are hearing isnt all from her asthma, her airway is still a bit small and her body is trying to find the "best" way to breathe. She doesn't "remember" how to relax her vocal cords. As she grows this should improve. If it doesnt he said she may need some stretching later on. (Im not sure how this is done) We see the pulm tomorrow afternoon...Im wondering if there are any fast-acting inhalers like adults use that are suitable for kids her age. Alli gets very upset whenever we must go anywhere in the carseat and a quick shot from an inhaler might be just what she needs to stop the increasing wheezes. Her color remains good and her activity level hasnt decreased a bit. We are so happy! Deb
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Grateful thorns have roses 24 weeker now almost 11 years old and in third grade! trach-decanned for good in 2008, gtube, asthma, CP, MR, GERD, latex allergy, osteopenia, aplastic cerebellum, ADHD/OCD, 60 lbs of humor and fiest, 4'4" tall, patient at Shreveport Shriners Childrens Hospital,, and I may be leaving something out but she is happy and growing and the light of our lives! DECANNED 6-17-08 [IMG] [IMG] 
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#2
05-22-2002, 11:50 AM
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Alli will be 21 months old on the 28th! She was trached at 4 months. Deb
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Grateful thorns have roses 24 weeker now almost 11 years old and in third grade! trach-decanned for good in 2008, gtube, asthma, CP, MR, GERD, latex allergy, osteopenia, aplastic cerebellum, ADHD/OCD, 60 lbs of humor and fiest, 4'4" tall, patient at Shreveport Shriners Childrens Hospital,, and I may be leaving something out but she is happy and growing and the light of our lives! DECANNED 6-17-08 [IMG] [IMG]
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#3
05-22-2002, 03:58 PM
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No, Alli had stenosis from pulling out her vent tube while in NICU. We saw the pulm today and dont go back for 2 WHOLE months! This is all so exciting. Deb
__________________
Grateful thorns have roses 24 weeker now almost 11 years old and in third grade! trach-decanned for good in 2008, gtube, asthma, CP, MR, GERD, latex allergy, osteopenia, aplastic cerebellum, ADHD/OCD, 60 lbs of humor and fiest, 4'4" tall, patient at Shreveport Shriners Childrens Hospital,, and I may be leaving something out but she is happy and growing and the light of our lives! DECANNED 6-17-08 [IMG] [IMG]
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