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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
12-05-2009, 05:29 PM
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HME with 02 port for pediatric patient
We currently use humid vent mini. We need a HME with JJ that has a 02 port! He hates the trach mask and refuses to keep it on! Does anyone know of one that may work for him! Even if anyone has a spare that i could try before I go and order something that will not work! Thanks you guys! We are needing these because we are now sprinting!
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Amy, Mom to Brionna (9) , and to Jarriell Jr better know as JJ (born 10-27-08) trach since 02-10-09, diagnosis Severe chronic lung & BPD. Nissen fundo also lower pyeloplasty & Mic-Key button all done 03-09. 2 Prolapse rectum repairs. Right & left ignueal hernia repairs. JJ decanned himself aug 2010 and has been doing great!!! Sleep apnea resolved with toncilectomy! 
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#2
12-05-2009, 05:42 PM
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PM me your address. Our's are a gilbeck (?) something-or-other with O2 port, and I can send you one if you'd like
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Janet, cruncy pagan automotive engineer mom to Alexander, born at 27 weeks, 1 lb 7 oz | vent/trach/gtube @ 5 months for BPD | g-tube free 7/11, trach free 8/11. Also mom to Bethany born @ 28 weeks, 2 lbs | gtube @ 5 months | trach/vent @ 6 months for BPD, bronchomalacia  
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#4
12-05-2009, 08:16 PM
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We use the Aqua + T HCH. I have plenty if you want to try one!!
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 http://mamazgirlz.blogspot.com/ Gretch mom to, Heather(22), Aimee(19), and Celia(14) Dandy-Walker syndrome,cleft palate(repaired at 9 yo!),t-tubes,asd, left pulminary arterial stenosis,trach,aspiration,reflux,fundo,g-tube,npo,dysphagia,kidney defect,neurogenic bladder & bowel,spina bifida,scoliosis,seizures,hip dysplasia, sensory issues, ADHD,vasomotor rhinitis,autistic like behaviors, hearing aides.
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#5
12-06-2009, 09:14 AM
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We used the portex thermovent t with O2 attachment (see pic of Sam in my siggy) it always worked well for us. good luck xxx
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  Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14). I am first and foremost a child
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#6
12-07-2009, 04:01 PM
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We used some type of adapter (cannot think of the name of it) that sat on the trach, with the HME attached to the adapter. It had a little port on the side for O2 tubing. I'll see if I can find a picture of it.
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Mommy to Hannah 8/2/03: fmr 25-weeker, trached 11/03 for subglottic stenosis, LTP 4/05, CTR 4/06, LTP 1/07. Decannulated 1/19/2007!! Gearing up for reconstruction #4; Also Mom to Brianna, 2/22/98: fmr 24-weeker, a little dramaqueen. My amazing gifts.
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#7
12-09-2009, 01:18 PM
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We use trachphone, and used them when on O2 too. They have an o2 port on the side. Never had any problems with them either. See link below:
http://www.platonmedical.co.uk/products/trachphone/
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Laura, Mum to Dominic, born full term in September 2005. Trach at six weeks due to a subglottic haemangioma and acquired subglottic stenosis. LTR in August 2009 and decannulated February 2010. A few other issues, that seem to be slowly resolving.
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#8
12-11-2009, 11:30 PM
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We have tried TRACOE humid assist III REF 641. It has an O2 port.
Want to try this kind, too? Just PM us your address and we can send them out as an early Christmas present from Tommy to JJ 
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Father (and mother) to Tommy, born via an emergency EXIT to Trache 8/1/06. Diagnosed with Congenital High Airway Obstruction Syndrome (CHAOS). VACTERRS Syndrome. Vocal cords completely fused until Double Staged LTP 03-03-08, refused shortly after stent was removed. Second Double Stage LTP 1-20-09. CarePage: BabyBoyce “With man this is impossible, but with God all things are possible.”
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