 |
 |
 |
|
|||||||
| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
 |
|
|
Thread Tools | Display Modes |
|
#1
11-20-2009, 02:55 PM
|
|||
|
|||
Reconstructive Surgeries
Hello all! Just doing some some research on airway reconstruction. Wondering if you all have any experience with (1) crychoid split; (2) resection; and (3) LTP? I believe we will be a candidate for #3 due to Hudson's stenosis being extremely close to his vocal chords. What is the procedure before, during and after? Recovery time? Also, will he have the trach after LTP for a short period of time?
__________________
 Brittany - Mommy of Hudson Bennett or otherwise known as "HB." 30 weeker with semi-diagnosed missing posterior cricoid section and/or acquired subglottic stenosis. Spent 9 weeks in the NICU before coming home on his due date. Trached 10/11/09, g-tube on 3/4/10, double stage LTP on 3/11/11. Awaing next steps!
|
|
#2
11-20-2009, 03:06 PM
|
||||
|
||||
|
My son had a single stage LTP done a year ago. YOu can read all the details here: www.parkersplace.wordpress.com
Feel free to PM me or e-mail with any questions: suzanne@suzanneuptonphotography.com
__________________
Suzanne Mom to: Berkeley (June 2002),Griffin (July 2004), and Parker (November 2006) My family blog: http://www.mylifewithboys.typepad.com Parker's LTP Blog: www.parkersplace.wordpress.com 
|
|
#3
11-20-2009, 04:47 PM
|
||||
|
||||
|
Ltp
Sydney had the LTP done. You must get it done at Cincinnati with Dr. Rutter or Cotton - they do it a bunch of different ways. Sydney had a staged surgery - we had to go out there a whole bunch of times.
__________________
mother of Sydney, born 8/17/06 (27 weeks gestational age). Trached for almost three years. She had two fundoplications, PDA ligation, and a rib graft surgery done at Cincinnati. She was decannulated on July 2nd.
|
|
#4
11-20-2009, 06:51 PM
|
||||
|
||||
|
Ayden had a single stage LTP (trach out in OR,after repair)a year ago,you can read the details at www.aydenava.blogspot.com just go back to May 2008...........Angie
__________________
 Ayden 6 yrs,tracheomalacia,G-T,nissen,rare type dwarfism ,resolved pierre robin,bronceomalacia,Single stage LTP May 2008,now decanned!!! .Ava 2 years www.aydenava.blogspot.com
|
|
#5
11-21-2009, 03:26 AM
|
||||
|
||||
|
i thought that for the resection the stenosis had to be a certain distance AWAY from the cords...maybe i remembered that wrong.
__________________
*clare. mum to emily  12/02/07 (placental abruption)APGARS 0+1 (HIE gr.2/seizures) but she MADE IT! with the determination that we still see in her every day. Grade III SGS - emergency tracheotomy July 2007. 2 stage LTR July 09 - DECANNED 27.9.09 tracheomalacia (GONE!! Sept08) partial agenesis of the corpus callosum residual VSDs post-surgery but lung pressures normal (Nov08), ?septo-optic dysplasia. 
|
|
#6
11-21-2009, 10:47 AM
|
||||
|
||||
|
My son had a single stage LTR that became a double stage LTR this summer. I think an LTR and and LTP are one in the same thing (but correct me someone if I'm wrong here). Single stage recovery is longer, and involves at least a week in PICU, but, if it works, you get the trach out a lot quicker too.
I think resection involves removing part of the trachea, which is riskier if if does not work.
__________________
Laura, Mum to Dominic, born full term in September 2005. Trach at six weeks due to a subglottic haemangioma and acquired subglottic stenosis. LTR in August 2009 and decannulated February 2010. A few other issues, that seem to be slowly resolving.
|
|
#7
11-21-2009, 12:09 PM
|
||||
|
||||
|
Quote:
If the "R" LTR stands for "reconstruction" then LTR is a more generic term that encompasses LTP. Some medicos use LTR instead of LTP in that case. I also think, though, that some folks use it to mean "resection". My advice (worth what y'all paid for it) is that we should probably try to define our terms when we use them just to be sure we are all talking about the same thing.
__________________
Karin Alex's Mom Alex born 6/19/2007, PRS, Trached and GTube at 3 weeks, palate repaired 12/20/2007, failed decannulation 5/7/08 due to undiagnosed suprastomal collapse, jaw distraction 9/9/08 (insertion) to 10/30/08 (removal). Single Stage LTP 2/17/09 and now member of the Naked Neck Club. Need a laugh? Check out http://itsallgoodtoday.blogspot.com/ 
|
|
#8
11-21-2009, 03:12 PM
|
||||
|
||||
|
Hi there--
I just wanted to say that our little guys share a birthday, and a grade three stenosis. My guy was born in 08, though. We have been to Cincy and are awaiting a date to have a single-stage LTP. Officially, a laryngotracheoplasty with an anterior graft using rib cartilage. We were told that in our case, a cricoid split wouldn't be possible because of his size. Not sure what that means, because I'm pretty sure I've heard of it done on tiny babies. Maybe they meant the size of his airway? Anyway, not trying to muddy the waters. I just wanted to say hello. It seems we have a little bit in common! Kari
__________________
Kari, mama to Sam, Georgia and Ike. Ike was born on 8/25/08 at 28 weeks 2 days after I had pPROM at 20 weeks. He was trached on 2/17/09 due to subglottic stenosis. You can read about Ike - and other stuff - on my blog over at www.haikuoftheday.com.
|
|
«
Previous Thread
|
Next Thread
»
| Thread Tools | |
| Display Modes | |
Linear Mode
|
|
All times are GMT -5. The time now is 09:48 PM.