Marissa's Trach Capped
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Alicia- mom to Marissa born 3-13-07 with multiple congenital anomalies. PRS type lower jaw and tracheomalacia are what we thought were the only reasons she needed the trach. Those issues are resolved but we found out recently she has vocal chord paresis. She will need a reconstruction and we are waiting to do that until Summer 2010. Check out her blog: http://marissalynne-07.blogspot.com
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