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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
05-20-2002, 10:19 AM
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I'm not sure exactly what to say... except I"m so sorry for your loss Sue... Know I am praying for you and your family. No words can express my feelings I want to express to you.
I am so sorry . Cory
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Parker, 3 Yrs. old., trached at 3 months (Nov. 2000) due to VC paralysis/paresis, DECANNULATED 9/5/03. A great litle guy who loves Hulk, Spiderman and is mommy's true love !!!!! (Page 8 of Aaron's Page) 
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#2
05-20-2002, 04:19 PM
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Oh I am so sorry to hear this. How heart breaking this is. I will pray for Sue and her family. I know God is with them. Gretchen
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 http://mamazgirlz.blogspot.com/ Gretch mom to, Heather(22), Aimee(19), and Celia(14) Dandy-Walker syndrome,cleft palate(repaired at 9 yo!),t-tubes,asd, left pulminary arterial stenosis,trach,aspiration,reflux,fundo,g-tube,npo,dysphagia,kidney defect,neurogenic bladder & bowel,spina bifida,scoliosis,seizures,hip dysplasia, sensory issues, ADHD,vasomotor rhinitis,autistic like behaviors, hearing aides.
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#4
05-21-2002, 07:47 AM
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Just brining this back to the top as we know Sue would have done for anyone else.
B
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*Husband to Angel who is 24 Cystic Fibrosis, Epilepsy, Turners Syndorme, (alot of things rolled into one),CVI, Hearing Impaired,3 Strokes, Brain Injury,G-Tube, Trached and Vent Dept 24/7* *Most People Dream of Angels, I get to Hold One Daily!!*
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#5
05-21-2002, 08:04 AM
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Sue and her family will remain in our prayers. A loss like this is so devastating, there is really no way to comprehend it...Deb, Mike and ALli
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Grateful thorns have roses 24 weeker now almost 11 years old and in third grade! trach-decanned for good in 2008, gtube, asthma, CP, MR, GERD, latex allergy, osteopenia, aplastic cerebellum, ADHD/OCD, 60 lbs of humor and fiest, 4'4" tall, patient at Shreveport Shriners Childrens Hospital,, and I may be leaving something out but she is happy and growing and the light of our lives! DECANNED 6-17-08 [IMG] [IMG]
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#6
05-21-2002, 09:27 AM
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Sue I'm so sorry about your husband . I'm speechless,sorry.
I have you and your family in my prayers. Flor
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#7
05-21-2002, 04:50 PM
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What a tragedy,I just wanted to say how sorry I am Sue,and that you and your family are in my thoughts,prayers and heart everyday.
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