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#1
10-20-2009, 12:15 PM
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Hi thought it was time to join !
Hi all,my name is sarah,think you have all heard abit about me and my precious girl skye that has bvcp from my fantastic sister who i am very lucky to have !
 looking forward to being able to talk to others about trach ect,as i feel quite isolated at times  .looking forward to getting to know you all and your beutifull children.thanks alot sarahx
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   Sarah Skyes mummy: trached at 5 days old due to Bialteral Vocal Cord Palsy, still early days and awaiting further tests!............. Last edited by skye liela's mummy : 10-20-2009 at 12:19 PM. 
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#2
10-20-2009, 12:22 PM
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Welcome to the boards to you and your family. You will find a wonderful and supportive group here.
All the best, Tess
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Tess-mom to Abigail 9 yrs old. DX Central Congenital Hypoventilation Syndrome and has a pace maker. Abby was decannulated April 15, 2010. She now sleeps with a V-pap machine and mask. Also mom to a fiesty red head named Olivia who is 6. I am the happiest mommy right now, all is good.
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#3
10-20-2009, 12:47 PM
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Welcome, glad you decided to join us. we are a pretty supportive bunch here and theres always someone whose been through similar things so can help with lots of advice!
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  Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14). I am first and foremost a child
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#4
10-20-2009, 01:59 PM
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hi nice to meet u sarah, i have a niece who has bvcp aswel.............lol
 welcomex
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 [ Kirsty, proud auntie to Skye Leila Gallacher born 29.08.09 tracheostomy at 5 days old due to bilateral vocal cord paralysis, still early days and awaiting further tests.........
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#5
10-20-2009, 02:40 PM
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So glad you decided to join !! It is really wonderful to have a sister who is so helpful and wanting to know the care that it takes to have our special kiddos at home..
Many come here for everyday questions, advice, or just to have others "listen" who understand what you are going through and dealing with.. so, jump on in, I am looking forward to getting to know you as well as your sister.
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 Lynn, mother of Brooke(19), Haely(17), Sydney(12)Dominic(1) and Joseph(DOB 11/03/06)DX:Jeune's Syndrome:trach 12/12/06:vent depend: Sprinting 12 Hrs a day!!!!EE:GERD:Hydronephrosis:Situs Inversus:Aortic Stenosis:Myocardial Hypertrophy:Kidney Transplant 08/18/10 http://www.caringbridge.org/visit/josephmollica
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#6
10-20-2009, 02:58 PM
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Hi Sarah,
I'm Sarah, mum to Nadia who also has bvcp and was retrached last week. Your sister has probably told you about me. Please feel free to pm me any time. I know exactly what you're going through having been there myself a year ago and to be honest, even though the trache was only out for 8 weeks today has felt a bit like going back to the beginning again. This board is amazing and kept me going through some of my darkest hours. Look forward to getting to know you more, Sarah x
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Mum to Nadia (ex 25 weeker) diagnosed with paradoxical bilateral vocal cord palsy at 4 months. Failed decannulation in August '09 and reintubated at GOSH October '09. Single Stage LTR March '11 www.nadiaconnelly.blogspot.com 
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#7
10-20-2009, 03:33 PM
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Thanks everyone ! you certainly made me feel v welcome here ! sure you will become like family before long lol !
yes lynn i am very luck to have a sister like kirsty though i do have to remind her shes my baby sister at times ! couldnt have got through this with out her.kirsty has told me quite alot about you sarah as we seem to have alot in common with our daughters,i to feel like you go 1 step forward then 3 back at times very frustrating  thanks again to all of you for the nice welcome,carnt wait to get to know you all better sarah x
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Sarah Skyes mummy: trached at 5 days old due to Bialteral Vocal Cord Palsy, still early days and awaiting further tests!.............
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#8
10-20-2009, 04:17 PM
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I'm new here also, but I wanted to say welcome
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 Melissa, mom of two great boys... Christian 8 yrs old and Hunter 2 yrs old... former 24 weeker(born at 15.3 oz, 11 inches); bpd, pulmonary hypertension(resolved), nissen/g-tube, off of o2 12/17/10, off the vent 6/30/10... DECANNULATED 12/17/10!!!
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#9
10-20-2009, 04:27 PM
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Welcome!! Now I have you 2 straight!
I called your sister Skye's mommy not long ago. SO-now I can tell you....you have a beautiful little girl! Love the pictures!! You will love the site-these ladies are so great and have gotten me through the bad days as well as the good.  Welcome!
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Katie-mom to Mitchell, DOB 12/16/04 trisomy 13 mosaic, severe laryngotracheobronchomalacia trached 5/04, cleft lip and palate DECANNULATED 12/16/10 A GREAT BIRTHDAY GIFT! www.caringbridge.org/mn/mitchelljohncragg 
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#10
10-20-2009, 05:04 PM
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thanks kate
very kind of u to say,there all beutifull on here i have to say.hi mum of 2 boys glad im not the only newbie !lol look forward to getting to know you and sharing things with each other
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Sarah Skyes mummy: trached at 5 days old due to Bialteral Vocal Cord Palsy, still early days and awaiting further tests!.............
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