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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
05-20-2002, 09:34 PM
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Hi
My son is also vent dependent but unfortunately we don't have the problem of walking around because due to his syndrome he can't walk. I know that they don't make longer circuits as we had asked for them too. It is a good sign though that he can be off the vent for a period of time and be happy about it. One idea would be to get a small wagon and teach him to pull it behind him. This would still give him some freedom but lessen the worry for you of all the disconects. I hope one day that I too might have this problem. Good Luck Anne, mom to Jimmy ( 2 1/2) GBS, trach, vent dependent, g-tube
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Anne, mom to Jimmy (9) Infantile Axonal Poly Neuropathy, trach, vent dependent, g-tube, scoliosis and spinal fusion with growth rods 
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#2
05-26-2002, 09:00 PM
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Hi just a question , how long are the circuits,my daughter is on the LTV and I think hers are around 10 feet, but I'd have to check to make sure.The RT's at the hospital extended them, she is on a CPAP of 14 and she gets the pressure she needs and can run around a little bit.
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