My son is also vent dependent but unfortunately we don't have the problem of walking around because due to his syndrome he can't walk. I know that they don't make longer circuits as we had asked for them too. It is a good sign though that he can be off the vent for a period of time and be happy about it. One idea would be to get a small wagon and teach him to pull it behind him. This would still give him some freedom but lessen the worry for you of all the disconects. I hope one day that I too might have this problem.
Anne, mom to Jimmy ( 2 1/2) GBS, trach, vent dependent, g-tube
Anne, mom to Jimmy (9) Infantile Axonal Poly Neuropathy, trach, vent dependent, g-tube, scoliosis and spinal fusion with growth rods