|

| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |

01-25-2004, 01:14 PM
|
 |
Senior Member
|
|
Join Date: Oct 2002
Location: Mission B.C. Canada
Posts: 2,900
|
|
Hi all you experts!
Indie has a little cold right now (which is so unusual for us, she never has one on a small scale). My question, Do you think I should give her a break from the valve? We have just started for the first time to make head way with vocals and bam a cold! I don't want to stress her system so I am afraid to use the valve right now! Flood me with advice.
Kellyxo 
__________________
Kelly, mother of , Indira 6 (trach and g-tube)[/color] [/color]and Max 4. [/color]When there is no you are the reason I bound out of bed. Thank-you for giving me life!
See Indie- http://www.tracheostomy.com/trachkids/kids12.htm
|

01-25-2004, 06:50 PM
|
 |
Senior Member
|
|
Join Date: Mar 2002
Location: Moore, OK
Posts: 6,010
|
|
Alli doesnt tolerate it when she's sick, soI dont even try now unless she's all hesalthy...BUT she makes tons of sound around her trach without it so it's not such a big deal for us. What does you ENT/ORL suggest? Deb
__________________
Grateful thorns have roses
24 weeker now almost 11 years old and in third grade!
trach-decanned for good in 2008, gtube, asthma, CP, MR, GERD, latex allergy, osteopenia, aplastic cerebellum, ADHD/OCD, 60 lbs of humor and fiest, 4'4" tall, patient at Shreveport Shriners Childrens Hospital,, and I may be leaving something out but she is happy and growing and the light of our lives! DECANNED 6-17-08
[IMG]
[IMG]
|

01-25-2004, 08:27 PM
|
 |
Senior Member
|
|
Join Date: Oct 2002
Location: Mission B.C. Canada
Posts: 2,900
|
|
Thanks Deb and Tracy,
I haven't checked with ENT but a good idea.
Kelly
__________________
Kelly, mother of , Indira 6 (trach and g-tube)[/color] [/color]and Max 4. [/color]When there is no you are the reason I bound out of bed. Thank-you for giving me life!
See Indie- http://www.tracheostomy.com/trachkids/kids12.htm
|

01-25-2004, 10:45 PM
|
|
Senior Member
|
|
Join Date: May 2002
Posts: 1,782
|
|
Seems like when Gaithy is really sick, I just leave the PMV off. Like you said, she is rarely sick on a SMALL SCALE! Gaithy is really sick right now, and I wouldn't even think of putting the PMV on. However, when she is just sniffly and stuff, I probably put it on her for a little while at a time. It's hard to say anything concrete. When she isn't feeling well, she sleeps more, and I never let her wear it when she is sleeping. Also, I usually want her to be very adequately humidified when she is sick at all, so the PMV needs to be limited in those times.
I hope Indie is feeling better soon!
christy 
__________________
Gaithy's Mom:28wk preemie born 8/2000 at 1 LB, IUGR, SGA, ROP, BPD, g-tube/nissen. Trached 4-2001 and LTV950 ventilator until 5-2003. Decannulated 8-3-04
|

01-26-2004, 04:22 PM
|
|
Member
|
|
Join Date: Aug 2003
Posts: 329
|
|
Ariel is experiencing the same thing right now. A small cold. I'm lost! She was unable to tolerate the PMV for a few days but she wore it all morning today. She seemed to get stressed out that she couldn't expire the air through her nose and she was holding her breath and making sad moaning sounds with each breath. I didn't realize how dependent I had become on the PMV (so little suctioning when it's on) Suddenly I'm back to carrying the suction to every room of the house and suctioning every 5 minutes, pulling over in the car etc. GRRR. Thats why I've been trying to get it back on her everyday! I hope Indie is better soon!
Karen
__________________
Karen, mom to Ariel born 7/10/02-trached 7/15/02. Chronic lung disease, bronchomalacia, hypopharangial collapse. O2 dependent when asleep. Newly diagnosed with unbalanced translocation, chromosome 7 and 10.
|

01-26-2004, 09:20 PM
|
 |
Mentor
|
|
Join Date: May 2003
Location: Atlanta, GA
Posts: 4,469
|
|
When Jacob is sick I usually leave his off. Of course, now he is on the vent until we can wean him back down to just nights, so he hasn't worn his for over a week. I agree that leaving it off also helps keep the secretions flowing, and possibly prevent a bacterial infection.
__________________
Amanda,Mom to Jacob, greatest kid in the world. X-Linked Myotubular Myopathy, trach, vent, g-tube.
|
| Thread Tools |
|
|
| Display Modes |
Linear Mode
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is Off
|
|
|
All times are GMT -5. The time now is 11:08 PM.
|