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| Ventilator Kids For parents and caregivers of children on ventilators. |
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#1
09-11-2009, 11:14 AM
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We have a date for surgery
I just received an email from the Jeune's Clinic at Nationwide Childrens Hosp--Chest expansion surgery is set for November 6.
 We will go up and be admitted on Nov 3(The day of Josephs 3rd birthday ) and will have all final tests done as an inpatient so they can get everything coordinated and results back STAT. This has been such a long road to get to, and now that we have a definite date for surgery, I'm beginning to get a little freaked out. I am still having trouble with the insurance aspect of it all, but hopefully by November it will be worked out. 
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 Lynn, mother of Brooke(19), Haely(17), Sydney(12)Dominic(1) and Joseph(DOB 11/03/06)DX:Jeune's Syndrome:trach 12/12/06:vent depend: Sprinting 12 Hrs a day!!!!EE:GERD:Hydronephrosis:Situs Inversus:Aortic Stenosis:Myocardial Hypertrophy:Kidney Transplant 08/18/10 http://www.caringbridge.org/visit/josephmollica
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#2
09-11-2009, 11:44 AM
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 You've got plenty of time to work it out. And I bet if you ask the coordinator at the hospital, they can help get the insurance worked out too - the social worker we worked with in the NICU pointed out that hospitals prefer to get paid for their work, rather than spending money taking you to collections, or writing the cost off as uncollectable 
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Janet, cruncy pagan automotive engineer mom to Alexander, born at 27 weeks, 1 lb 7 oz | vent/trach/gtube @ 5 months for BPD | g-tube free 7/11, trach free 8/11. Also mom to Bethany born @ 28 weeks, 2 lbs | gtube @ 5 months | trach/vent @ 6 months for BPD, bronchomalacia  
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#3
09-11-2009, 05:11 PM
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Wow Lynn! How weird that we should get the same news on the same day! I couldn't be happier for you. I've been waiting for this so long I'm not even nervous (yet). I just want this so badly.
This is great! Let's hope that 2010 is the year our boys can lose the vent. I daren't even think as far ahead as Angus becoming a nose-breather. Woohoo!!
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Kate, Mum to: Angus 27/6/04-24/11/10 My star of a boy who was vent and O2 dependent 24/7. One of the loveliest kids you could ever have met. Pics and vids Blog Juliet 28/9/99 perfectly healthy and beautiful Alasdair 28/9/10 Delightful, easy-going boy I'm a 'dawk' 
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#4
09-12-2009, 05:04 AM
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Fantastic news! Hope it all goes well. Hope both Joseph, and Angus are vent free soon xxxxx
__________________
  Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14). I am first and foremost a child
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#6
09-12-2009, 11:30 PM
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I can't imagine how nervous you are now that it's finally scheduled! You know I'll be praying all goes well. And of course you'll keep us updated either here or on FB right???
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#7
09-13-2009, 06:20 AM
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I really wish you all the best. Shame they couldn't book you AFTER the birthday - but that's our life isn't it. hope the chest expansion goes well.
Cherie
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Cherie Mum to twins (Mitchell and Holly) born 10 Dec 2003. Mitchell's dx is Pentalogy of Cantrells. Trache since January 2005, NG, ventilated on HT-50 and on oxygen overnight. DX includes: giant omphalocele, ASD, GORD, CLD, cleft-sternum, sub-cutaneous IVC and right atrium, muscular defect of central diaphragm, Pulmonary Hypertension, GDD, Pulmonary Stenosis, spinal cord syrinx. Holly is a happy healthy 5 year old!
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