Pediatric TracheostomiesFor parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support.
Along the same lines as my other thread but kind of a different question. I know for some kids that have had a trach for awhile their stoma doesn't always close completely after decannulation. Has anyone ever heard of the doctors putting a trach back in a decannulated child just to avoid intubating for a surgery? And is there any way to know which kids stomas will remain open?
__________________ SUSAN - Mom to Ainsley (age 6 - DOB 10/18/06) + Evie (age 12) and Adrian (age 9). Adorable and Trached since 11/06 (scarred vocal cords & OSA) but capping with mixed success since 1/09, sagittal craniosynostosis (cranial reconstructions 1/07 & 7/07), MicKey G-tube 06/07, Nissen 10/08, unusual form of cerebellar hypoplasia, hip dysplasia (Surgery 11/07 & 4/10), ptosis(post-surgery).
We're thinking alike.....again...like my last 2 responses....never mind...just read my last 2 responses to your other threads. I'll find out more and let you know. Maybe I'll even email the mom if I can get a hold of her email.
Katie-mom to Mitchell, DOB 12/16/04 trisomy 13 mosaic, severe laryngotracheobronchomalacia trached 5/04, cleft lip and palate DECANNULATED 12/16/10 A GREAT BIRTHDAY GIFT! www.caringbridge.org/mn/mitchelljohncragg