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Old 08-27-2009, 10:01 PM
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Hurrah, Jacob can now safely swallow thin purees/thickened formula! He is still aspirating thin liquids, but they feel confident this will come with time, as he adjusts to feeding orally again. So, no G-tube. The plan is to keep him on the N-G tube for now, as he transitions back to oral feeds and can take all his calories by mouth. It was so great to feed him some mashed potatoes with gravy tonight!!

Now, we wait for his ENT to book his bronch and see if he's ready for the big "D".
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Mom to Jacob, 26 Weeker - Our miracle boy, hero and the light of our lives Born 06/25/06; trached 10/17/06 for bilateral vocal cord paralysis, laryngomalasia, tracheamalasia, acquired subglottic stenosis, Failed Double Stage LTP 2009, Failed Single Stage LTP 09/16/10, Retrached 10/03/10;CP.
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Old 08-27-2009, 10:12 PM
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Kim... I am so glad you posted!!! I am even more happy to hear that you got the OK for Mr. Jacob to eat!!! Congrats!!
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former 26 weeker -- 4/2006 -- trach, g-tube, nissen; came home 1/07 vented 24/7; Successfully decanned 8/8/2008 -
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Old 08-27-2009, 10:26 PM
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This is GREAT news!!!!!
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Old 08-27-2009, 10:29 PM
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Yeah! I hope the big "D" happens soon.
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Ann-mom to Jack- 14 yrs old;vent dependent;dystroglycanopathy congenital muscular dystrophy; also mom to Hilary (22), Mary (19) and Eric (10)
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Old 08-27-2009, 10:44 PM
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Wow! that is great news! (and great that he wanted to eat after not doing it for so long!) I'll be keeping my fingers crossed that the bronch goes well !
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Lynn, mother of Brooke(19), Haely(17), Sydney(12)Dominic(1) and Joseph(DOB 11/03/06)DX:Jeune's Syndrome:trach 12/12/06:vent depend: Sprinting 12 Hrs a day!!!!EE:GERD:Hydronephrosis:Situs Inversus:Aortic Stenosis:Myocardial Hypertrophy:Kidney Transplant 08/18/10 http://www.caringbridge.org/visit/josephmollica
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Old 08-28-2009, 06:34 AM
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yipppeeeee! I was excited to see your post!! Way to go Jacob!!!
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Katie-mom to Mitchell, DOB 12/16/04 trisomy 13 mosaic, severe laryngotracheobronchomalacia trached 5/04, cleft lip and palate DECANNULATED 12/16/10 A GREAT BIRTHDAY GIFT!
www.caringbridge.org/mn/mitchelljohncragg

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Old 08-28-2009, 07:31 AM
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Yay!
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Alex born 6/19/2007, PRS, Trached and GTube at 3 weeks, palate repaired 12/20/2007, failed decannulation 5/7/08 due to undiagnosed suprastomal collapse, jaw distraction 9/9/08 (insertion) to 10/30/08 (removal). Single Stage LTP 2/17/09 and now member of the Naked Neck Club. Need a laugh? Check out http://itsallgoodtoday.blogspot.com/

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Old 08-28-2009, 07:36 AM
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I am so happy for you that is truly great news!!!
Michelle
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Old 08-28-2009, 07:41 AM
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Wahoooooooo!!!!
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Old 08-28-2009, 08:28 AM
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Yay!!
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