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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
08-25-2009, 01:13 PM
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Joseph has decided...
Walking is the way to go!!!!!! It has only taken him 2 yrs 7 mos and 21 days--- but he is walking
 (not just stepping- but actually walking!!!) He decided last night as I was getting his bath ready- he did not need one and promptly left the bathroom! I've said before this kid has a mind of his own, and when he is ready to do something he will... I knew he could do it, he just needed to want to do it (BTW: can you tell I'm just a little excited and proud )
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 Lynn, mother of Brooke(19), Haely(17), Sydney(12)Dominic(1) and Joseph(DOB 11/03/06)DX:Jeune's Syndrome:trach 12/12/06:vent depend: Sprinting 12 Hrs a day!!!!EE:GERD:Hydronephrosis:Situs Inversus:Aortic Stenosis:Myocardial Hypertrophy:Kidney Transplant 08/18/10 http://www.caringbridge.org/visit/josephmollica
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#3
08-25-2009, 02:58 PM
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wooo hooo Joseph! That's awesome news!!!
 He's going to do so well.Milo didn't start until he watched Maisie learning to walk - he was 4.
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Kerry, mom to identical twins, Elijah & Milo, both trach dudes, 26-weekers as a result of Twin To Twin Transfusion Syndrome (2002). Daughter, Maisie ('05) & Henry ('08). *BOTH decanned after LTP w/rib graft 4/10 & 7/10!* wooo hooooo!  The Birthday Boys by TwinTransfusion, on Flickr
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#4
08-25-2009, 04:25 PM
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Yay!!! Good news. So I'm wondering... did he have to take his bath?
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Has a daughter who is vent dependent.
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#5
08-25-2009, 04:33 PM
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WOW WOW WOW! this is GREAT!
so happy for you. cheeky chops, just deciding to go for it!
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*clare. mum to emily  12/02/07 (placental abruption)APGARS 0+1 (HIE gr.2/seizures) but she MADE IT! with the determination that we still see in her every day. Grade III SGS - emergency tracheotomy July 2007. 2 stage LTR July 09 - DECANNED 27.9.09 tracheomalacia (GONE!! Sept08) partial agenesis of the corpus callosum residual VSDs post-surgery but lung pressures normal (Nov08), ?septo-optic dysplasia. 
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#6
08-25-2009, 04:43 PM
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Way to go Joseph!!! Just amazing!!! They always do things in their own time. It's almost an all or nothing with these kids!
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Dawn  former 26 weeker -- 4/2006 -- trach, g-tube, nissen; came home 1/07 vented 24/7; Successfully decanned 8/8/2008 -  Follow decan at: http://sleepy-dogs.blogspot.com/
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#7
08-25-2009, 04:45 PM
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Quote:
 It was fun just watching him go!!
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Lynn, mother of Brooke(19), Haely(17), Sydney(12)Dominic(1) and Joseph(DOB 11/03/06)DX:Jeune's Syndrome:trach 12/12/06:vent depend: Sprinting 12 Hrs a day!!!!EE:GERD:Hydronephrosis:Situs Inversus:Aortic Stenosis:Myocardial Hypertrophy:Kidney Transplant 08/18/10 http://www.caringbridge.org/visit/josephmollica
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#9
08-25-2009, 06:49 PM
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Janet, cruncy pagan automotive engineer mom to Alexander, born at 27 weeks, 1 lb 7 oz | vent/trach/gtube @ 5 months for BPD | g-tube free 7/11, trach free 8/11. Also mom to Bethany born @ 28 weeks, 2 lbs | gtube @ 5 months | trach/vent @ 6 months for BPD, bronchomalacia  
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#10
08-25-2009, 08:07 PM
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Thats AWESOME!!!!
Love Kris
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Kris 3/24-26wk twin girls born 7/01 at 1lb15 & 1lb13. Rynn-trach. malacia, Grade 1 SGS, reflux, asthma, autism(high funct. Asperger's) & epilepsy. Madelyn-severe trach. malacia, Grade 3 SGS(Trached 10/21/01 to 11/20/11 DECANNED) ,PVL,BPD,CP,submucousal cleft,reflux, G-button(12/01), nissen X2, off vent '03.Two of the most Perfect Princesses! !!
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