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Old 08-16-2009, 08:01 PM
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kadiera kadiera is offline
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Default our first accidental decan

What a day.

Alexander woke up from his afternoon nap crying. My husband picked him up out of the pack-n-play, and decided Alexander needed to be suctioned. While he was yelling at me about the whereabouts of the suction machine (right next to him on the couch), Alexander puked.

I'm guessing it was his trach being loose, because when Barry set Alexander down on the floor to clean him and the floor and the couch up, Alexander started coughing, and popped his trach out - the velcro apparently had come loose during his nap (which I suspect means it didn't get put on very well yesterday, but that's neither here nor there).

At any rate, Alexander did just fine.

He'd actually puked all over the front of the bag that holds the vent, so I just scooped him up and went upstairs to his room and put in a new trach. He was due for a new one anyway, and I didn't want to put the old one back in just to change it out in a bit, and he needed to go on that vent so I could take this one apart to get it out of the bag so that could be washed. He kept putting his chin down and blocking his stoma, so I guess he's not doing too bad at breathing through his nose with his current leak, because in the time it took to get upstairs and grab a trach, he was perfectly calm and pink.

It was also only our second puking episode in the last 3 weeks....which compared to 3-4 a week in June, or especially to the once or twice a day back in April, is a huge improvement.
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Janet, cruncy pagan automotive engineer mom to Alexander, born at 27 weeks, 1 lb 7 oz | vent/trach/gtube @ 5 months for BPD | g-tube free 7/11, trach free 8/11. Also mom to Bethany born @ 28 weeks, 2 lbs | gtube @ 5 months | trach/vent @ 6 months for BPD, bronchomalacia

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Old 08-16-2009, 09:41 PM
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lynn lynn is offline
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Sorry to hear that you had such a mess on your hands to have to clean up, but it is great that you now know he can tolerate having the trach out for a little bit w/out any incident. (makes it much easier in an emergency situation to know you have a small amt of time on your side and not to set in such a panic mode) Nice he can breathe thru his nose/mouth so well-and hope it is a sign of great things to come !
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Lynn, mother of Brooke(19), Haely(17), Sydney(12)Dominic(1) and Joseph(DOB 11/03/06)DX:Jeune's Syndrome:trach 12/12/06:vent depend: Sprinting 12 Hrs a day!!!!EE:GERD:Hydronephrosis:Situs Inversus:Aortic Stenosis:Myocardial Hypertrophy:Kidney Transplant 08/18/10 http://www.caringbridge.org/visit/josephmollica
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Old 08-17-2009, 01:36 AM
libby1205 libby1205 is offline
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That is really reassuring that he did so well until you got a new trach in. Isabella had accidental decann in july and she was satting in 60s and passing out within a minute or two before we could get it back in. Also good news on the decrease in vomiting.
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Old 08-17-2009, 12:40 PM
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babybear babybear is offline
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Wow, you handled things like a pro! We've had 2 decanns now, and I'm hoping Gabriel doesn't decide to go for a third!
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Old 08-17-2009, 04:20 PM
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Andiesurprise Andiesurprise is offline
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Good job! We have only had one and it was in the middle of the night. The nurse came and woke me up. I quickly got it back in. Andie was scared though and wanted to be cuddled for a few hours she was shaking. It really scared her.
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Andie: five year old princess born at 34weeks with Esophageal atresia, laryngeal tracheal cleft, tracheal malacia. Now has a over 35 anesthetic procedures under her belt. Includes a collis gastro plasty fundo and a trach. We are currently gtube fed and continue to have a hole between trachea and esophagus www.carepages.com
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