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Old 05-17-2002, 04:53 PM
Brandon & Angel Brandon & Angel is offline
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Join Date: Mar 2002
Location: Alberta, Canada
Posts: 243
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Hi

Sorry it has been a week around here.....

A week I would like to forget at times and a week I would like to go on,,,,,,Makes alot of since I know.....

Angel was put on Topamax a week ago,,,,,Her Sezires have Decreased,,,,And so has her weight,,,,,2 pounds,,,,,,,So she is down to 39 pounds......Seems like you cant win.....They were going to take her off of it but they are going to give her a few more days......DUH!!!,,,,,I am not sure what to think any more,,,

Angles Stats are at 96%

They have her taking 5 of her own breaths a min the past 2 days ,,,,,,,,NOt when she is sleeping (sleeping she is on the Vent full),,,,,

I almost got fired at work,,,,,Not to my doing,,,,I was told I gave someone the finger,,,,Yah rite not like me at all,,,,,So I had to write why I wanted to work for the Company...DUH,,,,,,I need the money,,,,So I had to give them a bunch of Crap to say the least......

I am almost done "School"...So I have very little time.....

I am also working on getting Angel HOME!!!

Not sure if I am getting any where on that or not,,,,,As I only have 8 hours of nursing a day and I pay 25% of that,,,,,Seems like I cant win.....

Angel also had her Hearing Tested today....Not great news again,,,,She got new "Ears" (Hearing aids) not even a year ago and she has lost another 10% of her hearing.....So next week they can reprogram them if I take her in,,,,,That scares me,,,,I am hoping Jamie will go with us (Her RN),,,,,As I have never had her in the Van with the Vent on,,,,,,,

I am told within the next 2 years she will be 100% deaf

Funny how I can take her out for an hour or so but I cant take her home,......

We are also moving out of Province in July.......

Angel LUVEs her cards!!

She even sleeps with the Eeyore one.....What a girl.....I have to laugh at her.......

I think that is all that is new around here,,,,,,,

As for me I am jsut very depressed,,,,,,,

B
__________________
*Husband to Angel who is 24 Cystic Fibrosis, Epilepsy, Turners Syndorme, (alot of things rolled into one),CVI, Hearing Impaired,3 Strokes, Brain Injury,G-Tube, Trached and Vent Dept 24/7*

*Most People Dream of Angels, I get to Hold One Daily!!*
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