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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
07-29-2009, 04:46 PM
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Mickey button procedure...anything I should be aware of?
Hello!
Logan is going in on Aug. 12 to have his peg tube switched out for a mickey button. Is there anything special I should know...ask...or whatever? Thanks! Tara
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Tara, mom to four, including Logan (3/10/09), trached 5/21/09. Undiagnosed but living life to the fullest! http://www.carepages.com/carepages/myliilman  
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#2
07-29-2009, 05:40 PM
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Its been a while since she got hers. Is the PEG tube the all one piece tube and extension that they place till the surgery sight heals? Maddy had a one piece one at first(we hated it). Then when all was healed, they removed that, used this measuring device to figure out internal length needed and then put in a button. Very easy procedure. A little uncomfortable for her, but not too bad. Hope this helps!!
Kris 
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Kris 3/24-26wk twin girls born 7/01 at 1lb15 & 1lb13. Rynn-trach. malacia, Grade 1 SGS, reflux, asthma, autism(high funct. Asperger's) & epilepsy. Madelyn-severe trach. malacia, Grade 3 SGS(Trached 10/21/01 to 11/20/11 DECANNED) ,PVL,BPD,CP,submucousal cleft,reflux, G-button(12/01), nissen X2, off vent '03.Two of the most Perfect Princesses!  !!
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#3
07-29-2009, 05:51 PM
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It was easy for us too. all done and dusted in about 10 minutes, simple procedure just like Maddy's.
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  Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14). I am first and foremost a child
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#4
07-29-2009, 05:53 PM
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Our surgeon went straight for a MicKey, but I've heard the transition to one is super easy. It should literally be just changing it out. I will warn that at any g-tube change you may experience more drainage than you normally get. For us, it takes about a week or 2 to go back to normal. Just stay on top of any irritation that might occur.
If possible, you may want to check out the AMT minis. Gretch turned me on to them and we'll be switching over after we use our spare MicKey. They're essentially the same but lower profile.
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#5
07-29-2009, 06:07 PM
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Does the AMT minis use the same extensions as the micKeys or is the connection different??
Kris
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Kris 3/24-26wk twin girls born 7/01 at 1lb15 & 1lb13. Rynn-trach. malacia, Grade 1 SGS, reflux, asthma, autism(high funct. Asperger's) & epilepsy. Madelyn-severe trach. malacia, Grade 3 SGS(Trached 10/21/01 to 11/20/11 DECANNED) ,PVL,BPD,CP,submucousal cleft,reflux, G-button(12/01), nissen X2, off vent '03.Two of the most Perfect Princesses! !!
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#6
07-29-2009, 06:29 PM
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The connectors are different between the AMT and a Mickey.
Make sure that if there is a stitch holding the peg tube in, that whoever is removing the old one removes the stitch. Also, make sure that they have the proper size and potentially a down size available when they do the switch. Don't ask us how we know this! 
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Father (and mother) to Tommy, born via an emergency EXIT to Trache 8/1/06. Diagnosed with Congenital High Airway Obstruction Syndrome (CHAOS). VACTERRS Syndrome. Vocal cords completely fused until Double Staged LTP 03-03-08, refused shortly after stent was removed. Second Double Stage LTP 1-20-09. CarePage: BabyBoyce “With man this is impossible, but with God all things are possible.”
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#7
07-29-2009, 07:05 PM
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We just had our peg switched to Mickey button recently..It was super easy. It didn't seem to bother my son at all and it's SO much nicer than the peg! Good luck
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 Isaacsmommy--[/url]26 weeker born 6/29/07 with subglottic stenosis due to intubation, tracheal malasia, CP, trached on 1/4/08
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#8
07-29-2009, 07:54 PM
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Quote:
AMT mini ONE buttons can use the MIC-KEY extensions, but not the other way around. AMT mini buttons don't though...
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Dawn  former 26 weeker -- 4/2006 -- trach, g-tube, nissen; came home 1/07 vented 24/7; Successfully decanned 8/8/2008 -  Follow decan at: http://sleepy-dogs.blogspot.com/
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#9
07-29-2009, 09:12 PM
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Thank you! You'd think by now we'd be used to procedures, but I still get uneasy every time we have to make the trip down...
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Tara, mom to four, including Logan (3/10/09), trached 5/21/09. Undiagnosed but living life to the fullest! http://www.carepages.com/carepages/myliilman
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#10
07-29-2009, 10:04 PM
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Make sure they let you have a spare to keep at home. A trach/g-tube baby that I know through a friend had a hole in her balloon (or somethin like that). They went to the hospital, but they had to order a new one. She had to tape it up until it came in. Her hospital let her have one to keep home so if it needs to be replaced she can bring it with her and the surgeon can replace it.
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