 |
 |
 |
|
|||||||
| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
 |
|
|
Thread Tools | Display Modes |
|
#1
07-14-2009, 10:51 PM
|
||||
|
||||
trach change standing up?
Has anyone ever done this?? Mitchell was just standing so nice and watching his movie-it got me thinking about it. I don't think it would be safe as he could run just like that-but just curious I guess.
__________________
Katie-mom to Mitchell, DOB 12/16/04 trisomy 13 mosaic, severe laryngotracheobronchomalacia trached 5/04, cleft lip and palate DECANNULATED 12/16/10 A GREAT BIRTHDAY GIFT! www.caringbridge.org/mn/mitchelljohncragg 
|
|
#2
07-14-2009, 11:53 PM
|
||||
|
||||
|
My mom started changing my brothers trach standing up when he was seven or six? can't really remember will have to call her. He actually would stay still because if he was good she would let him help and he loved doing everything for himself. He was in charge of making his ties tight. If nobody else suggests anything i'll call her and find out.
__________________
Vanessa- Mommy to lil Andy Roo! Born Aug. 2nd 08CHARGE Syndrome (Coloboma, choanal atresia, Largomalacia, GERD,issues with his arotic arch) g-tube Aug. 08 and trached Sep. 09. ohhh...yes and second generation CHARGE syndrome.   
|
|
#3
07-14-2009, 11:57 PM
|
||||
|
||||
|
The time Ayden decanned himself right before the official decan, I put a trach in and he was sitting in his highchair - he was only 2 1/2 and he did OK. I think Angus get's his trach change sitting up - I thought I remember a video clip a while back... maybe it was just the cleaning.
__________________
Dawn  former 26 weeker -- 4/2006 -- trach, g-tube, nissen; came home 1/07 vented 24/7; Successfully decanned 8/8/2008 -  Follow decan at: http://sleepy-dogs.blogspot.com/
|
|
#4
07-15-2009, 12:10 AM
|
||||
|
||||
|
I have changed trachs standing and sitting when I worked with C, so long as he was cooperative it was no throuble. In fact It was so much easier to change standing because when you tried to lay him down he thaught you were going to change his diaper and he hates that.
__________________
Home care LPN and Volunteer EMT. The opinions and advice I give do not represent my employers or take the place of your physicians orders.
|
|
#5
07-15-2009, 12:23 AM
|
||||
|
||||
|
We do it sitting all the time. (I have my own reasons for doing it sitting up.) It's a little trickier of an angle but the advantage is that the neck is accessible so you can be done super quickly if the ties are already attached to the trach when you make the change.
__________________
SUSAN - Mom to Ainsley (age 6 - DOB 10/18/06) + Evie (age 12) and Adrian (age 9). Adorable and Trached since 11/06 (scarred vocal cords & OSA) but capping with mixed success since 1/09, sagittal craniosynostosis (cranial reconstructions 1/07 & 7/07), MicKey G-tube 06/07, Nissen 10/08, unusual form of cerebellar hypoplasia, hip dysplasia (Surgery 11/07 & 4/10), ptosis(post-surgery). Blog Link: http://ainsleyrae.blogspot.com/ 
|
|
#6
07-15-2009, 12:36 AM
|
|||
|
|||
|
We, too, do ours sitting up in a chair. I could see us doing it one day standing up and Tommy participating, but not yet
 . Some kids handle having their trache out for several seconds-minutes. That's what has lead some kiddos to capping & decan. You know your kids the best. If you decide to try it, let us know how it goes.~Maggie
__________________
Father (and mother) to Tommy, born via an emergency EXIT to Trache 8/1/06. Diagnosed with Congenital High Airway Obstruction Syndrome (CHAOS). VACTERRS Syndrome. Vocal cords completely fused until Double Staged LTP 03-03-08, refused shortly after stent was removed. Second Double Stage LTP 1-20-09. CarePage: BabyBoyce “With man this is impossible, but with God all things are possible.”
|
|
#7
07-15-2009, 02:14 AM
|
||||
|
||||
|
emily's too wriggly to do it standing up. we do everything with her sitting up except for the actual take out - put in where we lie her back.
__________________
*clare. mum to emily  12/02/07 (placental abruption)APGARS 0+1 (HIE gr.2/seizures) but she MADE IT! with the determination that we still see in her every day. Grade III SGS - emergency tracheotomy July 2007. 2 stage LTR July 09 - DECANNED 27.9.09 tracheomalacia (GONE!! Sept08) partial agenesis of the corpus callosum residual VSDs post-surgery but lung pressures normal (Nov08), ?septo-optic dysplasia. 
|
|
#9
07-15-2009, 01:03 PM
|
||||
|
||||
|
Good to know-here I thought everyone would freak out about it.
 I would love to try it-but Mitchell is so impulsive and crazy active, I just don't know what he'd do. His trach changes go well-I do them by myself. Only once was I a bit nervous-but his neck was positioned goofy--I guess that's why I asked, because it seems like the neck is in a better position standing. I'll let you know if I get the courage to do it sometime.
__________________
Katie-mom to Mitchell, DOB 12/16/04 trisomy 13 mosaic, severe laryngotracheobronchomalacia trached 5/04, cleft lip and palate DECANNULATED 12/16/10 A GREAT BIRTHDAY GIFT! www.caringbridge.org/mn/mitchelljohncragg
|
|
#10
07-15-2009, 01:17 PM
|
||||
|
||||
|
Sitting down, standing up, laying down, upside down(her not me
 ).....We've done it ALL!! LOL  Love Kris 
__________________
Kris 3/24-26wk twin girls born 7/01 at 1lb15 & 1lb13. Rynn-trach. malacia, Grade 1 SGS, reflux, asthma, autism(high funct. Asperger's) & epilepsy. Madelyn-severe trach. malacia, Grade 3 SGS(Trached 10/21/01 to 11/20/11 DECANNED) ,PVL,BPD,CP,submucousal cleft,reflux, G-button(12/01), nissen X2, off vent '03.Two of the most Perfect Princesses! !!
|
|
«
Previous Thread
|
Next Thread
»
| Thread Tools | |
| Display Modes | |
Linear Mode
|
|
All times are GMT -5. The time now is 01:06 AM.