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Pediatric Tracheostomies For parents and caregivers of children with tracheostomies.  Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support.

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Old 05-17-2002, 06:01 AM
Michael's mom Michael's mom is offline
Join Date: Mar 2002
Location: Virginia, USA
Posts: 305

Nadine, welcome, and WOW, that sounds horrible. First, just know that things "happen" in this world, and there is no explanation of how we got here. Most of us beat ourselves up at first, but once you get used to the trach, it's not so bad. Where do you live? Do you have any questions about insurance or equipment or getting nurses in your home? This is a great place to post questions, very knowledgable parents with GREAT advice. Take care, Sue
Mother to Michael, 1 yo, tracheomalacia, hypotonia
Michael's mom, 2 yo with hypotonia, possible myopathy, vent dependent at night, Beautiful, beautiful smile, and hugs are contagious
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Old 05-19-2002, 11:05 AM
trach mom trach mom is offline
Join Date: Apr 2002
Location: Alabama, USA
Posts: 137

Hi Nadine. My name is Kim and my 8 month old has had her trach for 7 months. The one thing I can say is that you DO get used to it. It takes a little while but the trach and trach care becomes second nature after a while. I did not believe the nurses when they told me this. We are hoping to have her decannulated soon and are probably going to have a hard time getting used to her not being trached!
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