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| Ventilator Kids For parents and caregivers of children on ventilators. |
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#1
06-09-2009, 11:05 AM
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Snoring while vented...
I wonder if this is normal...
Hannah sometimes snore when she's asleep. At first, i did not see it as a problem 'coz i thought this is fine as people do snore...but now i wonder, is this really normal? i mean, she is vented when asleep. what may cause her to snore? her sats are ok. so does her tidal volume.. could there be a problem? am asking her pulmo about this first thing tomorrow...but i wish to ask first if this happens to any of you... thanks! 
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-Joan- Mommy to Hannah Ysabelle (born 08/14/2007, diagnosed with CCHS, trached at 3 wks old, vented when asleep only) Home Page: http://hannahysabelle.multiply.com 
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#2
06-09-2009, 12:04 PM
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Joseph snores up a storm when he is sleeping, when I asked ENT they told me it was because he has a large leak around his trach, and he is breathing out of his nose and mouth to make the snoring sound. As long as he holds his sats and his heartrate is within his normal range, we are keeping the leak for PMV trials.
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 Lynn, mother of Brooke(19), Haely(17), Sydney(12)Dominic(1) and Joseph(DOB 11/03/06)DX:Jeune's Syndrome:trach 12/12/06:vent depend: Sprinting 12 Hrs a day!!!!EE:GERD:Hydronephrosis:Situs Inversus:Aortic Stenosis:Myocardial Hypertrophy:Kidney Transplant 08/18/10 http://www.caringbridge.org/visit/josephmollica
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#3
06-09-2009, 12:18 PM
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Alexander did that too, until they up-sized him from a neo to a peds trach. We always assumed it was a leak issue.
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Janet, cruncy pagan automotive engineer mom to Alexander, born at 27 weeks, 1 lb 7 oz | vent/trach/gtube @ 5 months for BPD | g-tube free 7/11, trach free 8/11. Also mom to Bethany born @ 28 weeks, 2 lbs | gtube @ 5 months | trach/vent @ 6 months for BPD, bronchomalacia  
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#4
06-09-2009, 03:07 PM
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Mackenzie did this too for quite a while until the last trach upsize. I didn't know it was snoring until I decided to pinch her nose one day and the noise stopped. I was shocked! The nurses in the NICU had never heard of a trached/vented kid snoring before, so all the nurses were pinching her nose shut too.
Like Lynn said, it's because of a leak around the trach. As long as your LO isn't showing signs of discomfort (dropping sats, increased work of breathing, etc) then you should be fine.
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#5
06-09-2009, 08:15 PM
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Autumn snores as well and always has.
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Lacy, mother to Madison (10), Gage (6), and Autumn (1) who has spina bifida, Chairi II Malformation, trach, vent, and g-button. She is pure joy and I am so blessed to be her mommy.
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#6
06-10-2009, 08:37 AM
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Same here.
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Has a daughter who is vent dependent.
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#7
06-11-2009, 12:17 AM
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thanks so much guys!
glad to know Hannah's not the only one... i think you guys are right about the leak. now i can enjoy hearing her snore voice whenever she does...and worry no more. (unless her stats are bad of course...)  thanks for sharing!
__________________
-Joan- Mommy to Hannah Ysabelle (born 08/14/2007, diagnosed with CCHS, trached at 3 wks old, vented when asleep only) Home Page: http://hannahysabelle.multiply.com
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#8
06-11-2009, 07:50 AM
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The biggest problem with the snoring was that, in the NICU, it caused their vent to alarm....continuously.....because he was losing so much air that the machine just couldn't figure out what to do
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Janet, cruncy pagan automotive engineer mom to Alexander, born at 27 weeks, 1 lb 7 oz | vent/trach/gtube @ 5 months for BPD | g-tube free 7/11, trach free 8/11. Also mom to Bethany born @ 28 weeks, 2 lbs | gtube @ 5 months | trach/vent @ 6 months for BPD, bronchomalacia
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#9
06-11-2009, 07:59 PM
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Abby does the same, but it doesn't sound like a regular snore, more like a honk.
Tess
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Tess-mom to Abigail 9 yrs old. DX Central Congenital Hypoventilation Syndrome and has a pace maker. Abby was decannulated April 15, 2010. She now sleeps with a V-pap machine and mask. Also mom to a fiesty red head named Olivia who is 6. I am the happiest mommy right now, all is good.
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#10
06-16-2009, 08:17 AM
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Same here! Jacob snores, too.
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Amanda,Mom to Jacob, greatest kid in the world. X-Linked Myotubular Myopathy, trach, vent, g-tube. 
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