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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
05-28-2009, 09:20 AM
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Nate is walking!
When I said it would be this summer, I didn't think it would be now. He still prefers his method of scooting around but will let go and walk if we ask. When he was 5 months old, we were having trouble getting him to tolerate being his stomach and then when he wasn't rolling over when he was a year-old and yada yada yada-I just honestly never thought we would get here. If you care to see a 2 year-old drunkenly walk -and his brother desperate for attention
 : http://tosertater.blogspot.com/2009/...joiced_24.html
__________________
~Caty mom to Bo (4/05) and Nate (3/07 ~trached 2/14/08 for resp. failure secondary to congenital hypotonia~vented while asleep) 
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#3
05-28-2009, 10:02 AM
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Great news!
__________________
 Lynn, mother of Brooke(19), Haely(17), Sydney(12)Dominic(1) and Joseph(DOB 11/03/06)DX:Jeune's Syndrome:trach 12/12/06:vent depend: Sprinting 12 Hrs a day!!!!EE:GERD:Hydronephrosis:Situs Inversus:Aortic Stenosis:Myocardial Hypertrophy:Kidney Transplant 08/18/10 http://www.caringbridge.org/visit/josephmollica
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#4
05-28-2009, 10:09 AM
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I watched the video, left a comment on your blog.
WHOOT WHOOT!!  Lisa
__________________
 Lisa Mom to Sloan, and fraternal twins Taiga and Gage. http://myversionofmylife.blogspot.com
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#5
05-28-2009, 12:56 PM
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Awesome! He's so darn cute!
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#6
05-28-2009, 01:46 PM
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WOW Nate that is wonderful news - next thing you know you will be running.... I am so happy for him
Michelle
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Grand Ma (or Nanou French version of Nana) to Cedric born on August 5, 2006, Trached on October 16, 2007 because of subglottic stenosis due to 27 intubations for debridment of polyps https://www.babiesonline.com/babies/c/cedric1/
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#7
05-28-2009, 02:05 PM
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excellent! he's really steady too :-)
__________________
*clare. mum to emily  12/02/07 (placental abruption)APGARS 0+1 (HIE gr.2/seizures) but she MADE IT! with the determination that we still see in her every day. Grade III SGS - emergency tracheotomy July 2007. 2 stage LTR July 09 - DECANNED 27.9.09 tracheomalacia (GONE!! Sept08) partial agenesis of the corpus callosum residual VSDs post-surgery but lung pressures normal (Nov08), ?septo-optic dysplasia. 
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#8
05-28-2009, 03:22 PM
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__________________
Trish PROUD Mama to TWO 26 wkrs 1055 g- Olivia Forever 7, trached for 6.5 yrs, gtube, iv port, BPD, Hydro/VA Shunt, Epilepsy, CP, Fought Hepatoblastoma for 28 months 688 g- Nathaniel is my bright 10.5yo
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#9
05-28-2009, 04:36 PM
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That's awesome! WTG Nate!
__________________
  Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14). I am first and foremost a child
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#10
05-28-2009, 05:08 PM
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Yeah Nate!!! I love it!!! It is so cool when you just see them take off like that. We keep thinking Luke is going to walk anytime now, and it is so fun to see that is exactly what Nate did. He looks like he is doing great. Your boys are such cuties!
__________________
Candi Mom of Sam & Gus (9 yo twins) and Luke (born 2/17/07 with CHARGE syndrome - choanal atresia (14 surgeries to open his nose - and counting), hearing loss & developmental delay, trached at 6 days old because his nose was blocked with bone, later diagnosed with subglottic stenosis and laryngotracheomalacia, g-tube placed at 18 months, tonsillectomy 10/08/09, unexpected decan 1/14/10  , now on CPAP for sleep apnea)
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