We still need to give Alli nebulizer treatments twice a day or as needed up to every 4 hours, but she gets so upset by having to get them with a face mask that she actually gets worse and makes herself sick from crying and fighting against it! Both times today I stopped after a few minutes and she still had to vomit from it. I will be calling the ped and pulm in the morning but I was wondering if anyone has had this experience before after decanulation? She never minded them thru her trach... Deb
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Grateful thorns have roses
24 weeker now almost 11 years old and in third grade!
trach-decanned for good in 2008, gtube, asthma, CP, MR, GERD, latex allergy, osteopenia, aplastic cerebellum, ADHD/OCD, 60 lbs of humor and fiest, 4'4" tall, patient at Shreveport Shriners Childrens Hospital,, and I may be leaving something out but she is happy and growing and the light of our lives! DECANNED 6-17-08
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