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Pediatric Tracheostomies For parents and caregivers of children with tracheostomies.  Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support.

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  #1  
Old 04-20-2009, 08:33 PM
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Well I have good news Leigha has no more trach! And she is doing good she has not had to have any oxygen since her surgery.. Last Monday we are just getting home and i wanted to let everybody know how she is doing.
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Old 04-20-2009, 08:37 PM
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Wow! Congratulations! You just made my day....
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Old 04-20-2009, 08:43 PM
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Thats Wonderful news!!!!

Love Kris
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Kris 3/24-26wk twin girls born 7/01 at 1lb15 & 1lb13. Rynn-trach. malacia, Grade 1 SGS, reflux, asthma, autism(high funct. Asperger's) & epilepsy. Madelyn-severe trach. malacia, Grade 3 SGS(Trached 10/21/01 to 11/20/11 DECANNED) ,PVL,BPD,CP,submucousal cleft,reflux, G-button(12/01), nissen X2, off vent '03.Two of the most Perfect Princesses! !!
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Old 04-20-2009, 08:48 PM
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Thats great news! Congratulations!
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Lynn, mother of Brooke(19), Haely(17), Sydney(12)Dominic(1) and Joseph(DOB 11/03/06)DX:Jeune's Syndrome:trach 12/12/06:vent depend: Sprinting 12 Hrs a day!!!!EE:GERD:Hydronephrosis:Situs Inversus:Aortic Stenosis:Myocardial Hypertrophy:Kidney Transplant 08/18/10 http://www.caringbridge.org/visit/josephmollica
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Old 04-20-2009, 09:08 PM
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That is so wonderful!!!!!!!! when you have a chance please post a pic.. congrats!!!!!!!!!!!
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Old 04-20-2009, 09:20 PM
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Great news! Congratulations!
Hope
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custodial g-ma to Shelby ~~ premie born 9/28/05 with choanal atresia, trached 12/28/05 -- sub-glottic stenosis due to repeated intubations, decanned 3/10/08

http://s307.photobucket.com/albums/n...t=4acb482c.pbw
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  #7  
Old 04-21-2009, 07:56 AM
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Fantastic news!
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Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14).
I am first and foremost a child
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Old 04-21-2009, 08:45 AM
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Congratulations!
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Old 04-21-2009, 09:17 AM
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Yay! That is wonderful news!
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Claudia - Mom to Sienna (4-22-07) and Sammy (12-14-2008).
Sienna was trached 9-27-07 for vocal cord paralysis. Right cord now moving.
Decannulated on 7-16-2008!
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Old 04-21-2009, 09:20 AM
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Fantastic!!
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Angela - mom to Zach 14, Jake 12, Nick 9, & Kate 9/28/06 Pierre Robin Sequence, Stickler Syndrome, decannulated July 4, 2008 -- Kate's blog http://pieceofkateb.blogspot.com/

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