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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
04-17-2009, 10:14 PM
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My New Gig
My mom works for the AZ Dept of health and they were looking for a family advocate for the EMS for children committee. My mom asked if I was interested, and I of course said yes. This is going to be a great way to get my voice heard on our most recent hospital experience (if you can remember that). I am looking forward to doing this, and hopefully help make a difference for the kiddoes like Addisyn.
________ HOME MADE VAPORIZER Last edited by bryantem : 02-21-2011 at 03:50 AM. 
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#2
04-17-2009, 10:35 PM
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Wow, what a great (perfect!) opportunity!
Hope
__________________
custodial g-ma to Shelby ~~ premie born 9/28/05 with choanal atresia, trached 12/28/05 -- sub-glottic stenosis due to repeated intubations, decanned 3/10/08  http://s307.photobucket.com/albums/n...t=4acb482c.pbw
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#3
04-17-2009, 11:05 PM
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Awesome! You'll do a great job!
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#4
04-18-2009, 08:50 AM
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That's an opportunity you can't pass up!
__________________
  Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14). I am first and foremost a child
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#5
04-18-2009, 11:36 AM
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Awesome!!! Is the a bona fide JOB??? Or volunteer?
Congrats!!
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#6
04-18-2009, 03:30 PM
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Good for you!
__________________
Dawn  former 26 weeker -- 4/2006 -- trach, g-tube, nissen; came home 1/07 vented 24/7; Successfully decanned 8/8/2008 -  Follow decan at: http://sleepy-dogs.blogspot.com/
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#8
04-18-2009, 09:38 PM
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Sounds like a great opportunity!
__________________
 Lynn, mother of Brooke(19), Haely(17), Sydney(12)Dominic(1) and Joseph(DOB 11/03/06)DX:Jeune's Syndrome:trach 12/12/06:vent depend: Sprinting 12 Hrs a day!!!!EE:GERD:Hydronephrosis:Situs Inversus:Aortic Stenosis:Myocardial Hypertrophy:Kidney Transplant 08/18/10 http://www.caringbridge.org/visit/josephmollica
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#9
04-18-2009, 11:12 PM
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Great opportunity for you and a wonderful advocate for our kids. Karen
__________________
Karen, married to Charlie. Mom to Gilbete', Jeanette , Andrea, Ben, Ciara, Brian and Brady. Also mom to Alize who is with God. Grandmother to Marek, Paige, Vincent, Leilani and Cayden, Emma and Samuel. 
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#10
04-19-2009, 12:27 PM
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Congrats on the new gig. Do you mean EMS as in emergency medical services. Or does that mean something else in your alphabet soup then in mine. If it is emergency medical services pm me I'd like to talk to you. This is an aria of passion for me.
__________________
Home care LPN and Volunteer EMT. The opinions and advice I give do not represent my employers or take the place of your physicians orders.
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