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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |

04-04-2009, 09:14 PM
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Senior Member
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Join Date: Dec 2003
Location: Ohio
Posts: 2,990
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Viral vs. Bacterial pneumonia
OK...for anyone not on FB, Hannah was inpatient for a couple of days with pneumonia, presumably of viral origins, but developing bacterial activity. So, the fever is not so bothersome now, I'm assuming that is under control (the bacterial infection anyway).
We were in for 2 days. She had a great AM Friday before discharge, but the evening and overnight not so great. She had an OK day today. (It also didn't help that our concentrator malfunctioned and when we thought we were giving her 1/8L-1/4L she wasn't getting that at all yesterday, so we have completely drained her).
It just seems that the viral piece is really giving her a run for her money. They discharged us with the usual...call for increased work of breathing, fever not controlled with Tylenol/Motrin, etc., etc.
But I'm just worried about her. Hoping we didn't break out too soon.
She is on 1/2L of oxygen now. Is this one of those, like RSV, that you will see progress and regression before they truly get better?
TIA.
Jen
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Mommy to Hannah 8/2/03: fmr 25-weeker, trached 11/03 for subglottic stenosis, LTP 4/05, CTR 4/06, LTP 1/07. Decannulated 1/19/2007!! Gearing up for reconstruction #4; Also Mom to Brianna, 2/22/98: fmr 24-weeker, a little dramaqueen. My amazing gifts.
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04-05-2009, 12:31 AM
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Junior Member
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Join Date: Nov 2008
Location: Philippines
Posts: 95
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hi jen,
i cannot give an answer to your question. i just want you to know that we'll be praying for your hannah's quick full recovery.
take care,
__________________
-Joan-
Mommy to Hannah Ysabelle (born 08/14/2007, diagnosed with CCHS, trached at 3 wks old, vented when asleep only)
Home Page: http://hannahysabelle.multiply.com
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04-05-2009, 06:00 AM
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Senior Member
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Join Date: Dec 2004
Location: England
Posts: 10,932
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When Sam had pneumonia he had periods of being completely flat and out of it and other times he was sitting up and playing happily. His worst time used to be late afternoon/early evening, when he would always spike a really high temperature which would really wipe him out. he was on between 2 and 4 litres of oxygen. I hope Hannah is better soon - just make sure you keep her hydrated and give her O2 as much as you can to keep her comfortable. thinking of you
Julie x
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Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14).
I am first and foremost a child
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04-05-2009, 09:13 AM
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Senior Member
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Join Date: Oct 2005
Location: St. Louis, MO
Posts: 2,823
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Nathan had bacterial pneumonia in December. No hospitalization, but he responded really well to the antibiotics. We went to Disney World the same day and he was fine.
Last week, he was diagnosed with viral pneumonia and this has been harder on him. We've been lucky to avoid a hospitalization, but he has been lethargic and crabby for a week. He has been back to school in the mornings, but he has napped for at least 2 to 3 hours every day and has slept 12 hours a night. It is just lingering...
I hope she is better soon. 
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Kristy
Nathan is 7! Trached at 2 hours old--laryngeal atresia. Double stage LTP 5/26/06, double stage LTP 1/23/09 and single stage LTP 4/21/09. Airway has restenosed, but we're still trach free 9/2012. Ding dong, the trach is gone!!
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04-06-2009, 03:40 PM
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Mentor
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Join Date: Aug 2005
Location: ct
Posts: 2,032
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How is she today?
Sorry I'm late on the get well-wishes, but I hope Hannah is recovering. She's had a tough couple of months!

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Christina
mom to Max born 01.19.05 @ 24wks
LTR 03/22/2007
LTR 07/15/2008
decannulated, but uses CPAP while sleeping
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04-07-2009, 06:22 AM
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Administrator
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Join Date: Feb 2002
Location: Grafton, MA
Posts: 4,176
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Did they check her for RSV?
Regardless, yes, these viral things can linger and cause setbacks for kids with baseline respiratory problems. But as long as you can manage her at home, probably best to get away from the hospital where there are lots more germs.
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Cindy - Mom to Aaron (age 19), trached for 4 years, subglottic stenosis, ADHD, learning disability, former 26 week preemie and identical twin to Eric (age 19), spastic quad CP, moderate MR, seizure disorder; Anthony (age 19), spastic quad CP, g-tube, seizure disorder, cortical vision impairment, profound MR; and Natasha (age 6) CP, cortical blindness, seizure disorder, profound MR, shunt, g-tube.
Home Page: http://www.bissells.com
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04-07-2009, 10:14 AM
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Senior Member
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Join Date: Dec 2003
Location: Ohio
Posts: 2,990
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Quote:
Originally Posted by cbissell
Did they check her for RSV?
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They did a nasal wash. She had RSV in January. She is positive for human metapneumovirus. I am going to scan in my printed copies of her x-rays. Scary!
__________________
Mommy to Hannah 8/2/03: fmr 25-weeker, trached 11/03 for subglottic stenosis, LTP 4/05, CTR 4/06, LTP 1/07. Decannulated 1/19/2007!! Gearing up for reconstruction #4; Also Mom to Brianna, 2/22/98: fmr 24-weeker, a little dramaqueen. My amazing gifts.
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