Im just curious, how often are the bronchs after the decanulation? Katie has one in the morning, and I dont know why, I just dont want her to have to go though many more of these. She does well, until she wakes up that is, then she is madder than a hornet.
She started out having them every two months, then it went to 4 months, then 6 months. Im hoping this time it will be a year or more...I am guessing she will have to have them yearly to keep an eye on things????? I dont know, but I do plan on asking the ENT...But what have you been told??
She is also having an endoscopy (spelling??) to check on her reflux. I should be going to sleep...need to get up about 4am to get to the hospital by 6am....ugggg