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Old 03-24-2009, 12:55 PM
sarah78 sarah78 is offline
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Default Vomit down tube

I'm so worried. I just gave Nadia a saline neb, thinking it's been 2 hours since she last had her milk so it would be ok. Anyway the neb made her start to cough and she vomited all over herself before I had a chance to turn her head to one side to make sure that she avoided the open tube. I can't be certain but think some vomit may have gone down the tube. I suctioned straightaway but now worried that it will be sitting in her lungs and may bring on pneumonia.

I know I'm probably being totally irational but can't help it.

Do you also think it's strange that she vomits 2 hours after drinking her milk? There was quite a lot and I would hav ethought that she'd have digested it by now! Which makes me think that maybe her digestion system is slow, which could be a symptom of Cystic Fibrosis which they have tested her for recently and found 1 defected gene in the blood test but the sweat test came back inconclusive!

I'm rambling but feel a bit of a nervous wreck at the moment, what with one worry or another and feel bad for posting this here as it seems trivial compared to some of the stuff that you guys are going through at the minute.

S
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Mum to Nadia (ex 25 weeker) diagnosed with paradoxical bilateral vocal cord palsy at 4 months. Failed decannulation in August '09 and reintubated at GOSH October '09. Single Stage LTR March '11

www.nadiaconnelly.blogspot.com

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Old 03-24-2009, 01:17 PM
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Vomit can happen at anytime, but if it's a regular occurance, as in several times a day, I'd check with your ped, or GI. If she brought up a ton of milk 2 hours post feeding, it could be a sign of Delated Gastric Emptying (DGE). Kate had this and was on Reglan for 2 years for it. A milk scan would rule it out.
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Old 03-24-2009, 02:27 PM
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I'd try not to worry too much, you'd know if a lot had gone down - lots of coughing afterwards, followed by secretions "raining" out the trachy and desaturations. Well, that's what it looked like the one time Dominic did this, and his was as he swallowed the vomit and it went down the wrong way, rather than it going down the trachy tube. This happened a couple of weeks after his trachy, and has never happened since. Was she wearing a swedish nose too? Even if not, when you think about the angles involved, it would be hard for any/ much vomit to get down.

If vomiting is regular though, you need to get it checked out. We were on donperidone (sp??) for a while, it works by making food be digested quicker, meaning vomiting is less likely.

Do they not test all newborns for CF now as part of the 7 day test? I'd try not to worry about it either way, I try now only to worry about "facts" rather than possible diagnosis.
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Laura, Mum to Dominic, born full term in September 2005. Trach at six weeks due to a subglottic haemangioma and acquired subglottic stenosis. LTR in August 2009 and decannulated February 2010. A few other issues, that seem to be slowly resolving.
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Old 03-24-2009, 07:54 PM
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did they do a chromosome test for the CF? Joseph had 4diff test, because the blood was positive for genes, sweat test inconclusive, did a swab dna that was inconclusive, and then a blood dna that came back that he does carry genes, so he is a carrier, but does not have the disease. I wouldnt worry about it until i had it confirmed by dna test. - I know its better said than done.. I was a wreck for the dna results to come back.
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Lynn, mother of Brooke(19), Haely(17), Sydney(12)Dominic(1) and Joseph(DOB 11/03/06)DX:Jeune's Syndrome:trach 12/12/06:vent depend: Sprinting 12 Hrs a day!!!!EE:GERD:Hydronephrosis:Situs Inversus:Aortic Stenosis:Myocardial Hypertrophy:Kidney Transplant 08/18/10 http://www.caringbridge.org/visit/josephmollica
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Old 03-24-2009, 08:37 PM
bryantem bryantem is offline
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Addisyn will sometimes have a little spit up come out within a few hours of eating, so it isn't too abnormal. Did she vomit a lot?
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Old 03-24-2009, 09:13 PM
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I can't make any guarantees, of course, but I can tell you that Ainsley vomited into her trach MANY times. It's kind of what you get when a child vomits regularly and has a trach. She has never had pneumonia. So try not to worry, just keep an eye out.

We had back and forth discussion of whether or not Ainsley had reflux, had PH-probe results saying she didn't and then results that said she did, tried meds that didn't help. Got some relief switching to a pureed diet but then had a flare up after granulation tissue. In the end after 2 years of suffering with the vomiting she got a Nissen Fundoplication and it all went away.

We were tested for CF too and she doesn't have it. So, again try not to worry.

We too had vomiting all over the place, sometimes after a feeding, but most often LONG afterward when you expect the tummy to be empty. The bottom line is that it is still in the stomach. Have you ever thrown up in the morning and seen your dinner come up? It happens. Ainsley was checked for delayed emptying and hers was actually faster than normal.

Sometimes vomiting is just a vomiting problem and not a sign of some other medical issue but I know that doesn't make it any easier. I hope you are able to get it to stop. I KNOW how hard it is! (But do let her doctors know and ask for their help getting it to stop.)
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SUSAN - Mom to Ainsley (age 6 - DOB 10/18/06) + Evie (age 12) and Adrian (age 9). Adorable and Trached since 11/06 (scarred vocal cords & OSA) but capping with mixed success since 1/09, sagittal craniosynostosis (cranial reconstructions 1/07 & 7/07), MicKey G-tube 06/07, Nissen 10/08, unusual form of cerebellar hypoplasia, hip dysplasia (Surgery 11/07 & 4/10), ptosis(post-surgery).

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Last edited by Ainsley's Mom : 03-24-2009 at 09:16 PM.
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Old 03-25-2009, 12:50 PM
sarah78 sarah78 is offline
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Thanks everyone. Well, we were up at the hospital today anyway so I checked with one of the registrars re vomiting 2 hours after feeding and he wasn't too concerned. He seemed to think that the saliva would have made it look like there was a lot of milk, which I guess is true as if she wasn't digesting her milk she wouldn't be hungry and refuse her next feed.

Whilst we were at the hospital we had news on the swab sample they took last week. It's come back positive for pseudonomas (?) which she hasn't had before. They were waiting for the lab to let them know the sensitivities so I decided to come home, having already been there for 3 hours. Anyway then get a call from one of the registrars saying that they want to seek further advice from one of the respiratory conultants at GOSH before they decide whether to treat or not. Nadia has definitely been under the weather the last couple of days; sleeping more, paler than usual and sneezing and wheezing so I'd just put it down to a cold. However now I'm concerned about the pseudonomas. I told the registrar that she had been off colour and he didn't think that we had to necessarily treat her straightaway, unless she worsened. She's still eating, which is always a good sign.

Anyway does anyone else have any experience with pseudonomas and what signs should I be looking for that it is becomming a problem?

S x
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Mum to Nadia (ex 25 weeker) diagnosed with paradoxical bilateral vocal cord palsy at 4 months. Failed decannulation in August '09 and reintubated at GOSH October '09. Single Stage LTR March '11

www.nadiaconnelly.blogspot.com

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Old 03-25-2009, 03:33 PM
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Quote:
Originally Posted by Ainsley's Mom View Post
I can't make any guarantees, of course, but I can tell you that Ainsley vomited into her trach MANY times. It's kind of what you get when a child vomits regularly and has a trach. She has never had pneumonia. So try not to worry, just keep an eye out.

We had back and forth discussion of whether or not Ainsley had reflux, had PH-probe results saying she didn't and then results that said she did, tried meds that didn't help. Got some relief switching to a pureed diet but then had a flare up after granulation tissue. In the end after 2 years of suffering with the vomiting she got a Nissen Fundoplication and it all went away.

We were tested for CF too and she doesn't have it. So, again try not to worry.

We too had vomiting all over the place, sometimes after a feeding, but most often LONG afterward when you expect the tummy to be empty. The bottom line is that it is still in the stomach. Have you ever thrown up in the morning and seen your dinner come up? It happens. Ainsley was checked for delayed emptying and hers was actually faster than normal.

Sometimes vomiting is just a vomiting problem and not a sign of some other medical issue but I know that doesn't make it any easier. I hope you are able to get it to stop. I KNOW how hard it is! (But do let her doctors know and ask for their help getting it to stop.)
I agree 100% with this. Alex puked into his trach many times. We changed the trach tube sometimes if it was really bad; suctioned a lot; and used nebulizers. It was not a sign of any other medical condition -- just Alex's way of reacting to the trach. It seemed to tickle the back of his throat. The bigger he got and the bigger his leak, the less it happened. Now, after the trach has been removed, we've no more vomiting than any other kid.

They treated him for delayed gastric emptying because he puked sometimes one hour after a meal, but it was NOT a GI doc that made the prescription, and this doc, while good, didn't really know what he was talking about. It really was never necessary.

We did get pneumonia once, but it was viral -- not aspiration.
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Alex born 6/19/2007, PRS, Trached and GTube at 3 weeks, palate repaired 12/20/2007, failed decannulation 5/7/08 due to undiagnosed suprastomal collapse, jaw distraction 9/9/08 (insertion) to 10/30/08 (removal). Single Stage LTP 2/17/09 and now member of the Naked Neck Club. Need a laugh? Check out http://itsallgoodtoday.blogspot.com/

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