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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#11
03-12-2009, 04:40 PM
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I wonder what Jasper's development will be like....
My niece, Caroline (who does not have a trach) is age 4.5 doesn't speak, walked late etc. She goes to a special school and is learning to speak with a type of voice box she carries with her. They don't really know exactly what is wrong with her, she had hypotonia, but everyday is just, hmm what will this bring. She is not where the "standard" is for her age, but she does well, loves school, loves cuddling. She has a happy life. When I get down sometimes I think well we are not all meant to be neurosurgeons. I think of all the people I went to school with and most have low paying jobs that don't require much thinking, anyone can do them... sorry just me rambling, anyway, I guess my point is, I feel better knowing I am not alone in my struggles, many people are dealing with issues with their children. big hugs to you for being the best parent you can be!
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Jasper, Nov 25, 2008 - Feb 23, 2010 loved and missed born 25 Nov 2008, @40.5 weeks Heart baby (DORV, VSD, PA, D-Tran)BI-v repair 10/09 craniosynostosis, trach 2/09 severe laryngealmalaysia, kidney reflux, gtube 2/09, nissen fundo 6/09  www.jaspersheart.com www.babyblogs.com/jasper Reece Aug 3, 2010 healthy 
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