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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |

03-08-2009, 10:10 PM
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Senior Member
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Join Date: Jun 2005
Location: Minnesota
Posts: 4,727
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Quote:
Originally Posted by bradensmom
Kate,
It's odd reading your post because it is EXACTLY what Braden did. Temp ski rocketed to 106 degrees. WBCs were normal throughout it all. He spiked his fever with Motrin on board. Not to scare you, but his was MRSA. It was very scary, but he is well now. Hopefully Mitchell will bounce back quickly and be back at home where he belongs.
Amy
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Ya, that's my fear. I'll be pissed if that is what it is, because that means I'm certain he got it here.  I guess what can you do though? That said-Sam had it and he wasn't here, so I guess now a days you can pick it up anywhere. We'll see, we should know more tomorrow when the cultures come back.
How long did they keep him in then? Just until the temp went down or did they hold him longer because of the MRSA? We'll see. I'll let you know what it comes back as.
His secretions are already thinning. This kid is so weird--he had SOOOO much thick green secretions so thick that it was plugging his trach and yet, what is he satting....99...he has so far done fabulous respiratory wise. Satting great. He got his first taste of the vibrating vest tonight-he loved it at first and then it got old. 
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Katie-mom to Mitchell, DOB 12/16/04 trisomy 13 mosaic, severe laryngotracheobronchomalacia trached 5/04, cleft lip and palate DECANNULATED 12/16/10 A GREAT BIRTHDAY GIFT!
www.caringbridge.org/mn/mitchelljohncragg
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03-08-2009, 10:13 PM
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Join Date: Jan 2007
Location: Colorado
Posts: 3,979
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Oh Geez Katie... I hope you guys can catch a break!! 
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Dawn

former 26 weeker -- 4/2006 -- trach, g-tube, nissen; came home 1/07 vented 24/7; Successfully decanned 8/8/2008 - 
Follow decan at: http://sleepy-dogs.blogspot.com/
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03-08-2009, 11:20 PM
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Join Date: Mar 2006
Location: Arkansas
Posts: 820
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Braden was in the hospital for 8 days, but if I had taken him to the hospital sooner instead of trying to deal with it at home with the pediatrician's help, I don't think that he would have had to stay so long. He had major issues with his sats and fever. He was on high flow O2 for several of the days.. They hit Braden's MRSA hard. He was on 3 different antibiotics including Vancomycin. It was scary to me.
Amy
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Mother to the most wonderful and beautiful 14 year old precious little man ever!! Also mother to just as equal 9 year old little wild woman. 
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03-08-2009, 11:36 PM
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Join Date: Mar 2007
Location: Bardstown, KY
Posts: 2,494
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I'm just now reading this and your updates. I hope they can figure out what is going on. Praying that it's not MRSA.
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Rene, Mom to my Angel, Tommy. Born 9/25/06 at 33 weeks, with Single Ventricle Heart Defects and Cricopharyngeal Achalasia (Gtube dependant, poor swallow). Trached at 2 months for Severe Subglottic Stenosis. My little flirt died unexpectly 8/20/08 from complications from undiagnosed bronchopneumonia.

Forever, Tommy's Mommy http://www.musingsofaheartfamily.blogspot.com/
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03-09-2009, 12:04 AM
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Senior Member
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Join Date: May 2007
Location: Cochranton, PA
Posts: 4,870
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Saying a prayer for Mitchell.  Karen
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Karen, married to Charlie. Mom to Gilbete', Jeanette , Andrea, Ben, Ciara, Brian and Brady. Also mom to Alize who is with God. Grandmother to Marek, Paige, Vincent, Leilani and Cayden, Emma and Samuel.
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03-09-2009, 02:16 AM
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Join Date: Feb 2009
Location: Corvallis, Oregon
Posts: 264
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Aw poor guy, hope he gets better soon and it doesn't turn out to be anything serious 
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03-09-2009, 07:42 AM
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Mentor
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Join Date: Jul 2004
Location: USA
Posts: 7,467
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Oh Kate, I hope you get an answer quick. I didn't get to read this entire thing, did they check for RSV?
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Kerry, mom to identical twins, Elijah & Milo, both trach dudes, 26-weekers as a result of Twin To Twin Transfusion Syndrome (2002).
Daughter, Maisie ('05) & Henry ('08). *BOTH decanned after LTP w/rib graft 4/10 & 7/10!* wooo hooooo!
The Birthday Boys by TwinTransfusion, on Flickr
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03-09-2009, 08:03 AM
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Join Date: Sep 2008
Location: KY
Posts: 699
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I hope they find out what Mitchell has, and can get him home soon. 
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03-09-2009, 10:45 AM
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Senior Member
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Join Date: Jun 2005
Location: Minnesota
Posts: 4,727
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Quote:
Originally Posted by twintotwin
Oh Kate, I hope you get an answer quick. I didn't get to read this entire thing, did they check for RSV?
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They did-negative, which is good.
He is doing well today--saying he is "all done" with his bed.  Sorry honey.
They are scared to take out his IV because it is almost impossible to get them started-it gets scary. We're still waiting on the culture-it should be back today.
I'm guessing they'll keep him another night just to be safe. His temp got down to 98 lastnight but this morning it was back to 100...not back considering where we've been.
__________________
Katie-mom to Mitchell, DOB 12/16/04 trisomy 13 mosaic, severe laryngotracheobronchomalacia trached 5/04, cleft lip and palate DECANNULATED 12/16/10 A GREAT BIRTHDAY GIFT!
www.caringbridge.org/mn/mitchelljohncragg
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03-09-2009, 10:51 AM
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Senior Member
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Join Date: Oct 2006
Location: Ontario Canada
Posts: 1,921
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OMG Katie, how scary! I hope you get home soon. Hugs 
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Mom to Jacob, 26 Weeker - Our miracle boy, hero  and the light of our lives  Born 06/25/06; trached 10/17/06 for bilateral vocal cord paralysis, laryngomalasia, tracheamalasia, acquired subglottic stenosis, Failed Double Stage LTP 2009, Failed Single Stage LTP 09/16/10, Retrached 10/03/10;CP.
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