The biggest thing we do when Alli has to have an overnight stay is take a favorite quilt (it's in between twin and full size) that we can spread out on the floor with her toys for some playtime here and there. Its harder if you dont have a private room but it can be done if you use common sense! Also, whenever possible, keep the routines you follow at home. Bath at same time (even if you are limited to a spongebath, it's still the routine) feeding at same time, play/nap etc. This is easy or hard depending on what procedures are being done and the cooperation of the nursing staff. Our favorite hospital completely supports this approach and only has private rooms, the nurses will make their visits on an adapted schedule when I explain her routines etc. The hospital we were at Monday was horrible, no cooperation in this regard (or any other), roommate etc. We will never willingly take her back there and told the dr why at his discharge visit. He was a little shocked, but said he was going in to private practice soon at another hospital (he's on faculty now, it's a teaching hospital). So maybe it will never be an issue. Good luck! Deb
Grateful thorns have roses
24 weeker now almost 11 years old and in third grade!
trach-decanned for good in 2008, gtube, asthma, CP, MR, GERD, latex allergy, osteopenia, aplastic cerebellum, ADHD/OCD, 60 lbs of humor and fiest, 4'4" tall, patient at Shreveport Shriners Childrens Hospital,, and I may be leaving something out but she is happy and growing and the light of our lives! DECANNED 6-17-08