 |
 |
 |
|
|||||||
| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
 |
|
|
Thread Tools | Display Modes |
|
#1
02-26-2009, 03:55 PM
|
|||
|
|||
The Boyces on NBC 5 local news
Just had to share it will all of you!
Because Tommy was in Chicago's Special Parent Magazine this February, (here is the link to that article: http://chicagoparent.com/publication.asp?pID=4), we got a call from NBC 5's local morning news show. They wanted to do a story on Tommy and on our entire family. They came to interview us and film the family this past Monday. (Boy was big brother excited to get to miss school in the morning for this!!!) "Teasers" have been playing this week, and the story is to air tomorrow, Friday, February 27 around 6:45. I've got butterflies in my tummy like crazy! I'm so excited to share our story with so many others. But I sure hope this doesn't turn into a media back lash like the California momma's story seeing as our child recieves state aid, too! But the reporter has already spoken to me about what a beautiful story this is, and she has shared with me her story line. It does sound beautiful, educational, and very non threatening. I can't wait to see it! I had to get a little chuckle out when the news woman said her editor had a very good point...if she is reporting on how Tommy can't breath on his own and needs the help of a ventilator, then how can this two year old be seen on video running around off his vent and wrestling around with his daddy and big brother?!? I'm so glad that's there job to edit this life long story down to just a minute or two and to try to figure out how to share this "on the vent, off the vent" stuff to the general public  We'll post a thread to the story once it is available on-line. ~Maggie
__________________
Father (and mother) to Tommy, born via an emergency EXIT to Trache 8/1/06. Diagnosed with Congenital High Airway Obstruction Syndrome (CHAOS). VACTERRS Syndrome. Vocal cords completely fused until Double Staged LTP 03-03-08, refused shortly after stent was removed. Second Double Stage LTP 1-20-09. CarePage: BabyBoyce “With man this is impossible, but with God all things are possible.” 
|
|
#2
02-26-2009, 04:34 PM
|
|||
|
|||
|
Cool! Can't wait to see it!
__________________
Has a daughter who is vent dependent.
|
|
#3
02-26-2009, 07:49 PM
|
||||
|
||||
|
Wow that is awesome! I can't wait to see it!
__________________
Mom to Rye, born preemie at 34 weeks with Subglottic stenosis grade 1/2 newly trached 7/22  Joined the naked neck club May 19th 2009 after LTR!!
|
|
#4
02-26-2009, 08:52 PM
|
||||
|
||||
|
Holy cow... how exciting!!! Make sure they send you a copy!!!
__________________
Dawn  former 26 weeker -- 4/2006 -- trach, g-tube, nissen; came home 1/07 vented 24/7; Successfully decanned 8/8/2008 - Follow decan at: http://sleepy-dogs.blogspot.com/
|
|
#5
02-26-2009, 10:59 PM
|
||||
|
||||
|
That's soooo cool! Can't wait to see it!!!!
__________________
Dawna, Mom to Tristan 6 yrs, former 22wk preemie with trach (decanned 6/20/07!!), Josh 25, Jenna 21, Gracie 14, and Jon 11. Photography website: http://pricelessmemoriesphoto.com/ 
|
|
#6
02-27-2009, 06:55 AM
|
||||
|
||||
|
How exciting
yes, don't forget to post a link when you can so us guys across the pond can see. Julie x
__________________
  Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14). I am first and foremost a child
|
|
#7
02-27-2009, 07:34 AM
|
||||
|
||||
|
That's so exciting!
__________________
Gabriel: born 12-07 PRS G-tube and Nissen 1-28-08 Trach 6-06-08 Palate repaired 2-03-09 www.caringbridge.org/visit/gabrielsmith
|
|
#8
02-27-2009, 10:37 AM
|
|||
|
|||
|
Here's the link to the interview and more:
http://www.nbcchicago.com/news/local...ial-Needs.html Hope you enjoy watching it as much as we enjoyed sharing our story with the Chicagoland area and now the world wide web  ~Maggie
__________________
Father (and mother) to Tommy, born via an emergency EXIT to Trache 8/1/06. Diagnosed with Congenital High Airway Obstruction Syndrome (CHAOS). VACTERRS Syndrome. Vocal cords completely fused until Double Staged LTP 03-03-08, refused shortly after stent was removed. Second Double Stage LTP 1-20-09. CarePage: BabyBoyce “With man this is impossible, but with God all things are possible.”
|
|
#9
02-27-2009, 05:41 PM
|
||||
|
||||
|
Wonderful story!
Your boys are so stinking cute, loved watching them wrestle. Lara
__________________
Parents to Isaac, born 12/8/06, idiopathic bilateral vocal cord paralysis, trach'd since 11 days old, repair of acquired tracheomalacia and Decannulated on May 15, 2008, still with some vocal cord paresis (decreased motion)  
|
|
#10
02-27-2009, 07:13 PM
|
||||
|
||||
|
Maggie,
I just finished viewing all three videos as well as reading the article. You and your whole family are wonderful, thank-you for sharing this.  Lisa
__________________
 Lisa Mom to Sloan, and fraternal twins Taiga and Gage. http://myversionofmylife.blogspot.com
|
|
«
Previous Thread
|
Next Thread
»
| Thread Tools | |
| Display Modes | |
Linear Mode
|
|
All times are GMT -5. The time now is 08:05 PM.