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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
02-18-2009, 03:44 PM
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Dr. Ian Jacobs
After much research, we have found out that our local ENT was trained by Dr. Ian Jacobs, who was trained by Dr. Cotton. I am wondering if anyone has Dr. Ian Jacobs and how you have found him?
We are still contemplating whether we should have our local ENT do Jacob's LTP or take him to Ottawa, where one of Dr. Cotton's fellows could do the surgery. We are getting a second opinion from Sick Kids, but I believe our local ENT would do an equally good job, so the choice is coming down to local v. Ottawa (5-6 hours away).
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Mom to Jacob, 26 Weeker - Our miracle boy, hero  and the light of our lives Born 06/25/06; trached 10/17/06 for bilateral vocal cord paralysis, laryngomalasia, tracheamalasia, acquired subglottic stenosis, Failed Double Stage LTP 2009, Failed Single Stage LTP 09/16/10, Retrached 10/03/10;CP.
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#2
02-18-2009, 03:57 PM
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Great to see you back on-I was JUST going to PM you lastnight.
I would go local-if you are comfortable with him...go with him. Nothing is worse than being in a hospital 5 hours away with people you don't know!!  Hope you had a nice time on your trip!
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Katie-mom to Mitchell, DOB 12/16/04 trisomy 13 mosaic, severe laryngotracheobronchomalacia trached 5/04, cleft lip and palate DECANNULATED 12/16/10 A GREAT BIRTHDAY GIFT! www.caringbridge.org/mn/mitchelljohncragg 
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#3
02-18-2009, 04:47 PM
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Kate has been with Dr. Jacobs fromn the very beginning. He's fantastic, incredibly smart and knowledgeable. He's a hard nut to crack, meaning he isn't very warm and fuzzy in the beginning, but he's nice and I had no problem communicating with him. Actually, I took to emailing him regularly and he always answered my questions thoroughly. And when he came to us in the OR waiting room to tell us he didn't need to do an LTP, and would decann her the next morning, he was practically giddy!!
PM me if you want to discuss further, or get some contact info. Really, I think I love him!
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Angela - mom to Zach 14, Jake 12, Nick 9, & Kate 9/28/06 Pierre Robin Sequence, Stickler Syndrome, decannulated July 4, 2008 -- Kate's blog http://pieceofkateb.blogspot.com/ 
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#4
02-18-2009, 06:42 PM
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Natalie sees Dr. Jacobs as well. He is the "Man" at CHOP. The nicu waited for him to be available for Natalie's trach surgery. He is not the most personable doc, but I guess he doesn't have to be. We asked about a PMV a little while ago and his response was "do you want you baby to breathe or talk?", very flat and matter of fact. He does have a great rep and was very responsive to us when we had an issue a few months ago.
Karen
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 [SIGPIC]Karen----Mom to Faith (6), and Natalie born 10/12/07 @ 25 weeks, 1lb 3oz. Came home 6/10/08 with a trach, vent, nissen with g-tube, and pda ligation. BPD, reflux, subglottic stenosis. Off the vent!!!! Double stage ltp 5/10. Decan 5/11/11!
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#5
02-19-2009, 07:30 AM
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Dr. Jacobs has an excellent reputation around these parts. (meaning Philly/NJ/NY)
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Kerry, mom to identical twins, Elijah & Milo, both trach dudes, 26-weekers as a result of Twin To Twin Transfusion Syndrome (2002). Daughter, Maisie ('05) & Henry ('08). *BOTH decanned after LTP w/rib graft 4/10 & 7/10!* wooo hooooo!  The Birthday Boys by TwinTransfusion, on Flickr
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