Aspiration after LTP
Have any of your children had problems with aspiration after having the LTP done? We had the LTP in October and my daughter has had pneumonia twice and is oxygen dependent now. Needless to say we are very disappointed and upset about this happening because she has never had any problems with aspiration in the past. She has not been oxygen dependent since April of 07 and now she can't eat anything by mouth. She was only taking tastes anyway, but these are all major setbacks after her LTP surgery. I am told that these are very rare complications, but I wanted to see if any of you have had any experience with this.
The funny thing is that her airway looks perfect and if it wasn't for the aspiration we would be talking about decannulation. Now if things don't improve with the aspiration then they may have to carve down the graft that they placed and this would cause her to have more protection of her airway, but it would cause her airway to be more narrow which would make it harder for her to get her trach out. I just want to scream with frustration. Please send prayers and positive thoughts that she can compensate once we really work with her on a stronger and more effective swallow and that the larger trach and pmv help. Thanks for listening.
mom to Elizabeth our little miracle and the most loving child I have ever met. Born 5/27/05 33-weeker, trached on 8/20/05 and most recently found out she has bilateral vocal cord paralysis and subglottic stenosis, also has g-tube, VP shunt due to hydrocephalus, tetralogy of fallot-repaired, esophageal atresia-repaired and chronic lung disease.