Not that you want more meds, but another way to assist in the movement of air and therefore lower the CO2 is through xopenex/albuterol treatment, if the the inhaled steroid doesn't help. I don't know if your pulm would be up for it, but we are on xopenex now (albuterol when we had the trach) as a maintenance drug b/c Ayden shows sign of air trapping on his xrays and some etalectasis (sp??). I don't know if a CO2 monitor would even be a possiblity, even though it's just outside the norm, if you aren't going in to see the pulm regulary, the elevated CO2 would scare me. Ayden had high CO2 when he was young and that is why he stayed on the vent, but it had come down as he got older. Each time we saw the pulm, even off the vent, he was always "perfect".
Just some food for thought for ya... hopefully you can go home soon!!!