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  #1  
Old 01-27-2009, 01:44 PM
mandiecaton mandiecaton is offline
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Location: terre haute, IN
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Im new here so I thought I'd introduce myself. My name is Mandie and Im mom to Katie (5), Gwen (3), and baby Jake, aformer 25 weeker now 7 months. Jake was in Riley for four months and finally diagosed with severe laryngomalacia. He got his trach, Nissen, G tube, and a hernia repair on Oct. 1 and has been doing great since. He came home without oxygen and has been nursing despite his dctor since christmas.
I spent he last few days reading through the posts on here and all I can say is I wish I had found this site months ago. After so much trial and error and feeing like we were the only ones in the world going through this its great to find other people and know we can gt through this!
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  #2  
Old 01-27-2009, 02:39 PM
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My little figther My little figther is offline
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Yes the people on this board are wonderful - somebody always have an answer for you they support you, they help you vent, cry and laugh. You are definitvely at the right place. Welcome

Michelle
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Grand Ma (or Nanou French version of Nana) to Cedric born on August 5, 2006, Trached on October 16, 2007 because of subglottic stenosis due to 27 intubations for debridment of polyps
https://www.babiesonline.com/babies/c/cedric1/
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  #3  
Old 01-27-2009, 02:48 PM
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JWorthington JWorthington is offline
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Glad you found us. Looking forward to getting to know you

Julie
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Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14).
I am first and foremost a child
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Old 01-27-2009, 08:56 PM
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alizesmom alizesmom is offline
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Location: Cochranton, PA
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Welcome. Karen
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Karen, married to Charlie. Mom to Gilbete', Jeanette , Andrea, Ben, Ciara, Brian and Brady. Also mom to Alize who is with God. Grandmother to Marek, Paige, Vincent, Leilani and Cayden, Emma and Samuel.

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Old 01-27-2009, 10:07 PM
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Hope Hope is offline
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Location: Monroe, GA
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Hello and welcome!
Hope
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custodial g-ma to Shelby ~~ premie born 9/28/05 with choanal atresia, trached 12/28/05 -- sub-glottic stenosis due to repeated intubations, decanned 3/10/08

http://s307.photobucket.com/albums/n...t=4acb482c.pbw
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  #6  
Old 01-28-2009, 12:21 AM
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Location: Alberta
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Hello and Welcome to a world of wonderful insightful people.

Lisa
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Lisa
Mom to Sloan, and fraternal twins Taiga and Gage.
http://myversionofmylife.blogspot.com
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  #7  
Old 01-28-2009, 12:36 AM
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Location: Portland Oregon
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I'm so glad you found this amazing group. My name's Michelle, and I'm very new here as well. My 5 year old daughter is scheduled for a e/t split and trach Feb. 4th. I found this group through our hospitals website and I'm soooo glad I did. This wonderful group has really helped me mentally and emotionally prepare for the upcoming surgery and has taken a lot of the fear out of trach care.

Michelle
kirafaesmom
www.kirafae.com
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  #8  
Old 01-28-2009, 07:57 PM
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faywrayy faywrayy is offline
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Glad you found us -- welcome!
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Angela - mom to Zach 14, Jake 12, Nick 9, & Kate 9/28/06 Pierre Robin Sequence, Stickler Syndrome, decannulated July 4, 2008 -- Kate's blog http://pieceofkateb.blogspot.com/

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Old 01-29-2009, 06:01 PM
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welcome to the boards.
Tess
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Tess-mom to Abigail 9 yrs old. DX Central Congenital Hypoventilation Syndrome and has a pace maker. Abby was decannulated April 15, 2010. She now sleeps with a V-pap machine and mask. Also mom to a fiesty red head named Olivia who is 6. I am the happiest mommy right now, all is good.
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